First came the stumbling, then the cane. Then came the diagnosis—a cousin to Lou Gehrig’s disease—primary lateral sclerosis. Read more


Join us as we celebrate Fearless Caregivers, KARI GASTON sharing her personal story of caregiving. Read more

Fearless Caregiver Profiles

I was hoping to get information about caring for someone with ALS. Gary and I have lived together for 29 years but are not married. Read more

Carenotes 2 Comments

“It can be devastating for the person diagnosed and their loved ones; however, many tools, techniques and therapies are available to maintain quality of life,” Read more


My husband Ryan was diagnosed with ALS at the age of 37. Shortly before his diagnosis, we were at a high point in life, celebrating our one-year wedding anniversary and expecting our first baby. Read more

Articles 3 Comments

The National Institute of Neurological Disorders and Stroke, National Institutes of Health, defines foot drop as “the inability to raise the front part of the foot due to weakness or paralysis of the muscles that lift the foot.” Read more