How did you become the caregiver for your loved one?
My husband had bilateral knee surgery which went wrong. He spent > 30 days in ICU. The doctor turned to me and said, "you're in it for the long haul".
Lisa and Phil
Has your relationship changed with the loved one that you are caring for? If so how?
My husband is still a 'man' and still the 'head of our household'. Gentle guidance is needed from time to time. Rapid decisions now take additional time. Time, new equipment means extra maintenance. New caregivers entering your home can add frustration.
What is the hardest thing about being a caregiver and the most rewarding thing?
Hardest things are dealing with family members. Some never see the difficulties, others pretend all is fine, some don't want to get involved, yet others I can console in. Working a career outside the home. #fail. Meeting paperwork criteria for programs.
What advice would you give to other caregivers?
Run to the mountains (or park) and scream out loud at the top of your lungs, once a week. Use pet therapy and music therapy for times when you need to get things done around the house. I started to become a minimalist. Reduce clutter and dusting. Make memories.
In ten words or less, what has caregiving taught you?
You can hurt your loved one with words. Be careful with words.
Describe a situation where being a Fearless Caregiver helped you succeed?
Recording times of illness with your cell phone and then show your doctor. You only get 20 minutes with the doctor, so be Fearless. Use every minute carefully. I give my notes to the doctor afterwards. The progress notes seem more accurate. Be organized.
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Fearless Caregiver Profile: Join us as we celebrate Fearless Caregivers sharing personal stories as we care for our loved ones. Read this week’s Fearless Caregiver Profile and feel free to add your profile as well, so we can learn from and share with our fellow caregivers.