Fearless Caregiver Profile: JAIMIE SQUICCIARINI

How did you become the caregiver for your loved one?

My grandfather has dementia, and had a bout with congestive heart failure. He could no longer care for himself. As I am not married or have children, I was the obvious choice.

Has your relationship changed with the loved one that you are caring for? If so how?

Yes, our relationship is special. We are closer than ever and he communicates with me unlike any other. He truly trusts me, as I truly trusted him when he raised me as a child.

What is the hardest thing about being a caregiver and the most rewarding thing?

Self preservation is hard. I have slept in hospital rooms days on end, as you all know, you never know when the doctor will come. I take so much better care of him than I do myself. I often miss my own doctors appointments to run him somewhere. 

What advice would you give to other caregivers?

Hmm. Take care of you too. Take time to call your friends or family every day. Most friends want to be there for you, but don't know how. I have made a concerted effort to reach out every day. Text someone good morning. The love of friends will help.

In ten words or less, what has caregiving taught you?

Compassion, unconditional love, I am a warrior

Describe a situation where being a Fearless Caregiver helped you succeed?

I am fearless when it comes to his medical care. You must be your own advocate. I have gotten gramps rehab, specialists, all the things that were not being offered. Asking questions and demanding answers, in a nice way,or not gets stuff done. 

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Fearless Caregiver Profile: Join us as we celebrate Fearless Caregivers sharing personal stories as we care for our loved ones. Read this week’s Fearless Caregiver Profile and feel free to add your profile as well, so we can learn from and share with our fellow caregivers.