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LET'S TALK ABOUT IT  / Let's Talk Archive / Carenotes

Let's Talk

I know the value of being
Prepared. Persistent. Professional. Polite.
And even a bit Pushy...

Fearless Caregiver Manifesto

Principle Two
I will fearlessly make my voice be heard with regard to my loved one’s care and be a strong ally to those professional caregivers committed to caring for my loved one and a fearless shield against those not committed to caring for my loved one.

Principle Five
I will fearlessly learn all I can about my loved one’s health care needs and become an integral member of his or her medical Care Team.


Question/Topic for July 2014

How do you make your voice heard?

Shared by: Tomas
San Mateo, CA

I am writing this letter in regards to comments. I believe we all in the caregiving field, let us be doctors all the way down to family members, are comitted to doing our best in the caring for those in need.

We can be as strong as compassionate, but one important factor is the one we are here to help out in the daily activities of those who request them. Let us be competent as this is our main mission.

Shared by: Michelle

I quit my job to stay with my dad who has terminal cancer, wouldn't take it back for anything in the world. I'm broke as a joke but I wouldn't have it any other way.

Shared by: James

I have always done what I thought was right. About 13 years ago I quit my job to care for my mother. Do the best you can that's all you can do.

Shared by: Kathy Genga

I wish I had the magic answer to that.. the way I make my voice heard is by making large print notes were ever needed, remember to wipe, remember to wash your hands , remember to use the bathroom, bed time is 8:00 and that always seems to help. Well, most of the time.

Shared by: Nina Brown-Lane
Freeport, NY

I visit my Mother's nursing facility 6 out of 7 days a week. I request Care Plan meetings every 6 months to inquire about her general health and well-being, her medications and an understanding of their purpose, her interaction with CNA's, recreation staff, and other residents. I stay connected to her needs, moods,and make sure she's receiving any and all benefits to which she's entitled.

In 2004, I enlisted AND RECEIVED then Senator Hillary Rodham Clinton's assistance in solving an issue with the Veteran's Administration which she solved. The end result, however, was the revelation that my Father had passed away years before. The VA was STILL demanding and taking insurance premiums from my Mother (for my Father's insurance policy) as she began to decline into Dementia. When I contacted the VA directly, they refused to help me which is why I wrote emails and letters to my three New York State Senators. Senator Clinton was THE ONE that actually came to our rescue. I will continue to be an advocate for my Mother until her last breath (or mine!) no matter what. After all, she did the same for me during my young life.

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