LET'S TALK ABOUT IT /
Let's Talk Archive /
I know the value of being
Prepared. Persistent. Professional. Polite.
And even a bit Pushy...
Fearless Caregiver Manifesto
I will fearlessly make my voice be heard with
regard to my loved one’s care and be a strong
ally to those professional caregivers committed
to caring for my loved one and a fearless shield
against those not committed to caring for my
I will fearlessly learn all I can about
my loved one’s health care needs and become an integral
member of his or her medical Care Team.
Question/Topic for July 2014
How do you make your voice heard?
Shared by: Tomas
San Mateo, CA
I am writing this letter in regards
to comments. I believe we all in the caregiving field, let
us be doctors all the way down to family members, are comitted
to doing our best in the caring for those in need.
We can be as strong as compassionate, but
one important factor is the one we are here to help out in the
daily activities of those who request them. Let us be competent
as this is our main mission.
Shared by: Michelle
I quit my job to stay with my
dad who has terminal cancer, wouldn't take it back
for anything in the world. I'm broke as a joke but
I wouldn't have it any other way.
Shared by: James
I have always done what I thought
was right. About 13 years ago I quit my job to care
for my mother. Do the best you can that's all you can do.
Shared by: Kathy Genga
I wish I had the magic answer
to that.. the way I make my voice heard is by making
large print notes were ever needed, remember to wipe,
remember to wash your hands , remember to use the
bathroom, bed time is 8:00 and that always seems to
help. Well, most of the time.
Shared by: Nina Brown-Lane
I visit my Mother's
nursing facility 6 out of 7 days a week. I
request Care Plan meetings every 6 months to
inquire about her general health and
well-being, her medications and an
understanding of their purpose, her
interaction with CNA's, recreation staff,
and other residents. I stay connected to her
needs, moods,and make sure she's receiving
any and all benefits to which she's
In 2004, I enlisted AND
RECEIVED then Senator Hillary Rodham
Clinton's assistance in solving an issue
with the Veteran's Administration which she
solved. The end result, however, was the
revelation that my Father had passed away
years before. The VA was STILL demanding and
taking insurance premiums from my Mother
(for my Father's insurance policy) as she
began to decline into Dementia. When I
contacted the VA directly, they refused to
help me which is why I wrote emails and
letters to my three New York State Senators.
Senator Clinton was THE ONE that actually
came to our rescue. I will continue to be an
advocate for my Mother until her last breath
(or mine!) no matter what. After all, she
did the same for me during my young life.