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To Trial or Not to Trial: That Is the Question

By Hilary Wright

(Page 3 of 4)

- What are the possible short-term benefits?
- What are the possible long-term benefits?
- What are the short-term risks, such as side effects?
- What are the possible long-term risks?
- What other options do people with my risk of cancer or type of
  cancer have?
- How do the possible risks and benefits of this trial compare with;
   those options?
- What kinds of therapies, procedures and/or tests will I have during
   the trial?
- Will they hurt, and if so, for how long?
- How do the tests in the study compare with those I would have
   outside of the trial?
- Will I be able to take my regular medications while in the clinical
- Where will I have my medical care?
- Who will be in charge of my care?
- How could being in this study affect my daily life?
- Can I talk to other people in the study?
- Will I have to pay for any part of the trial such as tests or the study
- If so, what will the charges likely be?
- What is my health insurance likely to cover?
- Who can help answer any questions from my insurance company or
   health plan?
- Will there be any travel or child care costs that I need to consider
   while I am in the trial?

Also, you and your loved one should consider utilizing some of these tips when asking your doctor about cancer clinical trials:

- Make sure that you accompany your loved one on their visits to the
  doctor or to the research team.
- Plan what to ask ahead of time.
- Donít hesitate to ask new questions that you may think of while
   youíre there.
- Write down questions in advance, to ensure remembering to ask
   them all.
- Write down the answers, so that you and your loved one can
   review them whenever needed.
- Consider bringing a tape recorder to make a taped record of what's
   said (even if you write down answers).

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