I am a dedicated, loving, and gainfully
employed father to THREE legally disabled
children with severe neurological and developmental
disorders, and husband to a disabled wife. I
have a good job, so I fall through the cracks
of low-income vs. wealthy and able to afford it.
I can't hold a second job because of the time
involved in caring for my family. We have had 13
hospital stays in the past two years, my wife has
brain damage, my six year old has had a stroke. All
three children have autism and related disorders. I
have no support. Sometimes it seems like I would get
more services if I quit my job and was unemployed. I
am a firefighter/paramedic and I love my job, but last
year we spent well over 25 percent of our income on
medical expenses, and I am the sole breadwinner.
Why are these services all for grandparents of disabled
children, or caregivers for the elderly? My situation is
desperate, but because I have a job, the four people I care
for are under 60 and I am under 60, I am left out in the
cold. It infuriates me that my family keeps falling through
the cracks, and we are facing bankruptcy solely because of
medical costs! Why is there no help for people like me!?