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CARENOTES | Past Carenotes | Let's Talk


Welcome to CareNotes. In this special section we will feature a reader's letter and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to respond to this letter, simple follow the link provided at the end of the letter and add your comments and thoughts to our CareNotes Board.

This Week's Carenote - 6/24/14


Subject: Dysphagia

We have a dear friend who had cobalt treatments for cancer of a nodule on his throat 30 years ago. He has recently had serious swallowing problems and had aspiration pneumonia due to this. As a result of failing numerous swallow tests, he now has a permanent feeding tube. Our question is, how can we can care for him socially and mentally? It is difficult for him to even go to the movies as food is everywhere. Watching TV is painful as most of the commercials involve food. His wife passed away at the same time this chronic condition became evident and he admits to being a little depressed. He does have a portable machine and can drive to the store for needed items and to the post office, but this has become his only outing. What type of social events can one have for him, as well as for others invited, that do not involve food or drinks? We really need your help!


Caregivers Reply

Shared by: Carol
New Castle, DE

How about outdoor concerts in the park? Or attending local concerts in a school, library, arts center, etc. The focus is on the entertainment, not food. There are many inexpensive local events as well as community classes at local libraries or by parks and recreation agencies that do not include food....

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