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CARENOTES | Past Carenotes | Let's Talk


Welcome to CareNotes. In this special section we will feature a reader's letter and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to respond to this letter, simple follow the link provided at the end of the letter and add your comments and thoughts to our CareNotes Board.

This Week's Carenote - 6/3/14


I am 55 years old. My husband, 77, was diagnosed about three years ago with dementia. I take care of him in our home with the assistance of my son, who helps lift him because I canít. I make sure he has his meds, drive him to appointments, take him for rides in the car. He has been having lots of problems lately with forgetting things. I sit about three feet from him at night to keep an eye on him so he doesnít fall out of his electric chair. He sleeps a lot. I am looking for a support group online because itís difficult for me to get away and just relax and talk to people. Thank you.


Caregivers Reply

Shared by: Pat

The Alzheimer's Society has a group for caregivers of those with Alzheimer's or dementia. There is also a Great group called Family Care Alliance that has a support group. Just be sure to sign up for individual posts rather than the digestif you try it. That is the one I am on now as my hubby who had EOAD has been gone 8 years.

Shared by: Eileen

Check out both the on-line groups, Inspire and Patients Like Me.
Both have active family caregiver groups.

And/or talk to:

  • the outreach person at your church/place of worship

  • a social worker at a local hospice (non-profit will probably be more responsive to a call than a for-profit one, but they should both have info and insight you can use)

  • the Family Caregiver Support Group coordinator
    at your local Area Agency on Aging

  • the local Alzheimer's Association Chapter

At all local agencies, ask to speak to either a social worker or the intake person (who will likely be a social worker, too).

Hope this info helps.

Shared by: Joe
Boston, MA

Hello Martha,
I too sought an online group to chat with those in similar positions. I found and joined WellSpouse at:

Most of the caregivers seem to be 45-85 years old, and many need advice on how to do things that their spouse used to handle. One of the best things I did was to join one of the "Respite Weekends", which was the first vacation I've had in years! It was nice to be with a group of people in the same boat.

Do give the organization a look over. I am so glad to find people that have the same thoughts and problems that I do.
Good Luck!

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