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CARENOTES | Past Carenotes | Let's Talk

Carenotes

Welcome to CareNotes. In this special section we will feature a reader's letter and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to respond to this letter, simple follow the link provided at the end of the letter and add your comments and thoughts to our CareNotes Board.

This Week's Carenote - 10/09/12

I am looking for help for my son. His wife was diagnosed with brain cancer at 29 and given six months to live seven years ago. She is paralyzed on the left side, and has some brain damage from the surgeries and treatment. She has to be dressed, taken to the bathroom and needs help in all areas. She cannot be left alone.

They live in Michigan and he is well known for his devotion to her. Too complicate this more, my son works out of state. He flies out on Sunday and back on Friday. He pays for day care Monday to Friday and gives the night person free room and board because he can't afford to pay for 24-hour care. He is alone with her on the weekends with no help.

I live out of state and saw them last week. His health is under attack; he has high blood pressure, is gaining weight and he is depressed. I know he sees no end in sight and as much as he loves her, he has no life. His wife is physically and mentally demanding; of course the financial demands on him are huge.

All of the extended family and friends' help has gone into taking care of her; but if something happens to him, I don't know what will happen to her.

Are there any agencies or foundations for situations like this? I am very worried about him; the years have taken their toll. Any suggestions would be appreciated.

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