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CARENOTES | Past Carenotes | Let's Talk

Carenotes

Welcome to CareNotes. In this special section we will feature a reader's letter and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to respond to this letter, simple follow the link provided at the end of the letter and add your comments and thoughts to our CareNotes Board.

This Week's Carenote - 10/02/12

My husband has frontal temporal dementia. I am so thankful to have a support group. Recently, I placed my husband in a rehab facility, hoping to qualify for a program for assisted living through Medicaid. They discharged him on the fourth day because he didn't need enough help. I told them he needed help with everything, meaning eating, bathing, toileting, meds, dressing, etc.  How did they not know? They knew he had dementia and had a very recent form from the PCP that spelled it out. 

I am having a terrible time getting a partial refund for the remainder of the week and his medication, including three Viagra that should not even be on the list! They excluded the Plavix he takes so his cardiac stents won't get clogged.  That drug is so important, his cardiologist has him stay on it even through a tooth extraction.

You live and learn. Someone should write a "book" on the secrets to nursing home care. It seems anything can and does happen.  There must be good advice to share with all of us who are stuck in the situation of eventually needing nursing home placement.  Or maybe we need a book on how to keep the loved one at home without breaking the bank.  It is becoming very difficult.

Chris

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