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CARENOTES | Past Carenotes | Let's Talk

Carenotes

Welcome to CareNotes. In this special section we will feature a reader's letter and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to respond to this letter, simple follow the link provided at the end of the letter and add your comments and thoughts to our CareNotes Board.

This Week's Carenote - 10/04/11

Coping with my dear husband who is 84, 10 years older than I.  He has severe polyneuropathy and possibly Parkinson's. I thank God he has his mind. We need a caregiver because I cannot hold him if he falls. He needs to be held onto by a gait belt whenever he moves. My biggest fear is financial; just seeing to his personal needs (he is also post-op bypass) demands four hours of time at least. I am fighting depression, resentment, anger, guilt, and grief to see him like this. These are the golden years?

M

 

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Name:
Location:
Date: 10/05/2011
Time: 01:54 PM

Comments

I fully understand what you are going thru..and the financial part also. I have been taking care of my husband for 12 years..who has Parkinson, dementia, neuropathy badly, lewdy bdy. I look for people with whom I can communicate.


Name: Brenda
Location: Tennessee
Date: 10/05/2011
Time: 01:36 PM

Comments

Have you considered using a wheelchair part-time, for the times that your husband is most likely to fall or to give you a break? You can't possibly hold him if he falls. All you can do without hurting yourself is to guide him down to minimize injury. Consider the intermittant use of a heavy duty walker and/or wheelchair. Your husband should understand the need, and it doesn't mean he can't ever walk, just that you pick the times.


Name: Marilyn
Location: South Florida
Date: 10/05/2011
Time: 08:11 AM

Comments

Dear M.... Please check out the following website. I don't know where you live, but here in south Florida there are many organizations that can offer assistance for little, if any, money. I'm also the principal caregiver for my 85 year old husband with advanced Parkinson's and dementia. He also went through bypass surgery a few years ago and is totally immobile, incontinent and unable to communicate intelligently. I don't have a lot of money, but fortunately, I am able to pay for an aide a few hours a day to take care of his personal hygiene, something I could not do without assistanc, so in that respect I am very fortunate. http://www.agingcarefl.org/seniorHelpline


Name: Susan
Location: Connecticut
Date: 10/04/2011
Time: 09:43 AM

Comments

M, There are many home care agencies that you can call to help you with caregiving. What you need is a one on one caregiver to come into your home to help. You can call your state agency on aging to give you a list of home care agencies. You need to have some down time. I hear that you want to keep him at home. I commend you for that. You also need to find a caregivers support group in your area. Call your local senior center they are a great reference center. Call your town social worker. They can refer you to agencies and get paper work started for you for help through the state. I wish you luck. Sue


Name: Marc A
Location: Florida
Date: 10/04/2011
Time: 06:13 AM

Comments

There are so many caregivers who are in need of help but lack the resources to pay for it. Is your husband a veteran? If so, he may qualify for a non-service connected pension from the VA to help you pay for care. If you'd like more information, call 866-507-0003 and I'd be happy to help if I can. Ask for Marc.


 







 

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