Caregiver.com

For About and By Caregivers
 


 
Subscribe to our bi-monthly publication Today's Caregiver magazine


  + Larger Font | - Smaller Font
 



CARENOTES | Past Carenotes | Let's Talk

Carenotes

Welcome to CareNotes. In this special section we will feature a reader's letter and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to respond to this letter, simple follow the link provided at the end of the letter and add your comments and thoughts to our CareNotes Board.

This Week's Carenote - 01/03/11

My grandmother has Alzheimer’s disease and she is currently taking Aricept. Previously, she was taking Namenda, but her hallucinations were too strong.  I'm very concerned with my mother, too, as she seems to be forgetting stuff and saying things that don't make any sense.

I'm the only grandson and son in the house.  My other brother doesn't seem to care, so I have full responsibility for both of them. I need help ASAP.

  • I need guidance as to what I'm supposed to do on a daily basis with this disease.
  • I need to know what is good for nutrition.
  • I need to know what is good in regards to her personal care

I'm desperate and don't know if I'm doing everything correctly.

G


 

 

 

Reply to Letter  |  View Comments  |  Past Carenotes |   

   
Name
Location
   
Add Your Comments  

 
YOU  MUST ENTER THE NUMBERS 4567 IN THIS BOX BEFORE YOU SUBMIT THE FORM.  IF YOU DO NOT IT WILL PROMPT YOU TO START OVER.
  

View Comments

Name:
Location:
Date: 06/05/2013
Time: 05:16 AM

Comments

G, please contact Alzheimer's association near you asap. Alzheimer has a wealth of information that can help you and your family during this time.


Name: Mary Ann
Location: Conyers, GA
Date: 06/12/2012
Time: 08:32 PM

Comments

Help me with my 86 yr old mother, I am new at this and I am getting burned-out.


Name: Linda Gilman MS, LPC
Location: Bettendorf, IA
Date: 03/04/2011
Time: 09:28 AM

Comments

Hi, I am a Gerontologist and work with the older population. Firstly, find out what type of Alzheimers your grandmother has...If her doctor tells you that it's JUST ALZHEIMERS, that's not true. Certain dementias work against the medications given. That said, get the book The 36 Hour Day...it tells you the different types of Alz. and gives you information on what you need to do to communicate. I'd be happy to give you more information and resources. You can reach me at lpgilman1@mchsi.com.


Name: Dorothy
Location: Virginia
Date: 03/01/2011
Time: 11:04 AM

Comments

The Alzheimers Association is a fantastic resource -- they have support groups, publications, and a 24/7 telephone helpline. Also an online forum. I strongly recommend that you contact them. Good luck!


Name: Miki Seaborn
Location: Brighton, Il
Date: 03/01/2011
Time: 10:25 AM

Comments

This is an excellent forum to find support and answer to questions. I belong to several online support groups. I am caregiver to a 26 yr.old son with traumatic brain injury and his 7 yr.old daughter. I came to this group to help with the care of my 82 yr. old Mom, (Whom I was caring for before my son had his accident). Mom has the beginnings of dementia...she has a cyst on her brain stem. I have considered getting her tested for Alzheimers... I have tons of info on Alzheimers, but honestly don't have time to retreive as it is lunch hour and time for son's meds. There are some on line support groups, like this that offer alot of help and sharing. Give these a looksee. Yahoogroups.com > once you've registered you can type in what groups you are interested, ie Alzheimers or caregiving. I belong to yahoogroup> ABINews2U (Anoxic brain injry news). There 2 sites that offer free Webpages that you can enroll in ... and find tons of support and corresponding with others to share links to info. www.carepages.com www.caringbridges.com The most crucial advice that I have received so far...Make time for "Me time" so that you don't burn out. Someone once said, "whom shall care for the caregiver when the caregiver cannot give care." That said, that is one of the most difficult task to acheive. But so very necessary. Hope this is of some helps... I hope you Find your blessings, joys, time for "Me" and answer to your questions. Miki


Name:
Location:
Date: 03/01/2011
Time: 08:41 AM

Comments

First thing is to contact your local Alzheimer's Association location and seek their help. You need to build a good team of resources so that you aren't carrying the whole load. They can help with straegies, respite services and who you need on your team.


Name: Laura
Location: Frankfort, IL
Date: 03/01/2011
Time: 08:23 AM

Comments

PLEASE make your first step a call your Grandmother's doctor to get a better understanding of the disease and to get information on her care. Also look in your area for an Alzheimer's support group. They will be a wealth of information and offer you lots of support as well. You should also make an appointment with your family's attorney to understand what type of health care (and financial) power of attorney papers you will need to continue to care for your Grandmother. With your Mother, you need to get her to a doctor for evaluation too. Remember, you are not alone. Many of us have gone through this situation and many of us continue to be involved in our loved one's care. There is a lot of information out there--review it all and use the things that best work for you and your family.


Name: Evelyn Flynn
Location: Kingston, New York
Date: 03/01/2011
Time: 07:25 AM

Comments

G, The first thing you need to do is connect with your local Alzheimer's Association for guidance and support. Good luck and hang in there.


Name: Connie
Location:
Date: 03/01/2011
Time: 07:18 AM

Comments

You did not say where you live. Try to find a local support group. You will need it. There is a wealth of information available online, and many places have .pdf booklets you can d/l and read. Or stuff that can be mailed to you.


Name:
Location:
Date: 03/01/2011
Time: 06:44 AM

Comments

Caregiver Support Find Advice on Helping a Loved One with Mild to Moderate Alzheimer's. www.alzheimersdisease.com Alzheimer's Association - Find Us AnywhereFind us anywhere in the United States, and learn about programs and services available in your area, including support groups and educational workshops. ... www.alz.org


Name: Kathy
Location: NH
Date: 03/01/2011
Time: 06:28 AM

Comments

Hi, Oh my goodness! First piece of advice, take any help you can get from anyone and don't be afraid to ask anyone and everyone, neighbors, church members, relatives. I am a caregiver with brothers who don't show any interest or aren't able to deal with what is happening but they will do things for me that do not involve direct care. I call them and say "I need this done or I need you to do this now" and they will come through that way. Whether it's dealing with insurance,taking care of pet appts.,picking up groceries, doing errands, whatever. My heart goes out to you. Find the number to your local Alz. Association and call them. They can direct you to help. Find respite care so you can get out, go to support group meetings for caregivers. I know you probably don't know how you'd ever find time to do this but try to find a way. Some support groups you can bring your family member with you and they are taken care of while you're at your meeting. Nutrition wise - high protein shakes you can pick up in the grocery store like Ensure, Boost, etc. Don't sweat big meals, do whatever is easiest for you but still gets nutrition in. Keep everything simple. Personal care - look into home health, bathing once a week or less is fine.Sponge baths are ok, set her up in a chair at the bathroom sink with water and let her sponge herself if she can. Find out what she can do and let her. Don't correct her, let her say things that you know are wrong. It will just frustrate you more to keep correcting her. Just gently nod or go along with it. I could go on for days. I was a caregiver for my Dad who had Alzheimers (11 years) and now am caregiver for my mom who has physical issues but not dementia. Good luck and my heart goes out to you.


Name:
Location:
Date: 03/01/2011
Time: 06:16 AM

Comments

Adult Day Care can be the answer to all your questions. Many Day Cares are open seven days a week. To find one in your area you can call the Alz. Assoc. in your area for a list. And ask what funding they could offer you as well. Hope this Helps!


Name: Rose
Location: Deerfield Beach, FL
Date: 03/01/2011
Time: 05:43 AM

Comments

You do not need to do this alone. Help is out there, and I urge you to seek it. I would start with the Area Agency on Aging in your community.


 







 

Join our Group or become
 a
Fan below

Caregiver on Facebook

   Follow us on Twitter

You TubeFearless Caregiver Channel