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CARENOTES | Past Carenotes | Let's Talk

Carenotes

Welcome to CareNotes. In this special section we will feature a reader's letter and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to respond to this letter, simple follow the link provided at the end of the letter and add your comments and thoughts to our CareNotes Board.

This Week's Carenote - 11/23/10
I facilitate a Well Spouse Support Group. One of our members has a long and stressful life as a caregiver. Her mother lived till 104 and she cared for her husband who had developed dementia and finally passed away. She has taken care of her 36 year old son who has Downs Syndrome. She is a wonderful mother who has fought for her son every day of his life.
 
In the last few years, her son has become aggressive and confrontational. She is afraid of him at times because he seems to get angry and willful. Is there any professional or group that she can consult that would have information as to how to deal with her situation?
 
Thanks,
 
BT


 

 

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Name: Lou Henderson
Location: Maxton, N. C.
Date: 11/30/2010
Time: 04:12 PM

Comments

A support group will be of great benefit to you. It has helped me in more ways than one. There should be a group near you. Good luck and may God bless.


Name: Janet
Location: Kansas
Date: 11/30/2010
Time: 03:10 PM

Comments

Your Doctor could order home health to help you with some of the problems. Usually with a new diagnosis that had disabled the patient a social worker visits for discharge planning. If this did not happen I am pretty sure you could still get help.


Name: hedwig koenig
Location: danbury ct
Date: 11/27/2010
Time: 05:27 PM

Comments

Her state should have a department of Mental Retardation which should be able to help. They provide case management services and more. Best of luck ....


Name: Judith Keenan
Location: Stratford, Connecticut
Date: 11/23/2010
Time: 08:57 AM

Comments

I have a sister with Downs Syndrome and Alzheimer's disease who is part of a program developed for this population by the Kennedy Center, Inc. of Trumbull, Connecticut. My sister is currently in a nursing home and leaves every day to participate in this program. If you have any questions I would suggest you call Wendy Block at the Kennedy Center: 203-332-4535: wbloch@kennedyctr.org. I too will be happy to share my experience as caregiver to my sister Kathy who is currently in year 8 of Alzheimer's disease. My best to you. Judith Keenan: judithjkeenan@aol.com. 203-375-6743.


Name: Dorothy Saunders
Location: Fairfax, VA
Date: 11/23/2010
Time: 06:08 AM

Comments

Hi BT, I also facilitate a Well Spouse support group! I commend you for offering such an important resource to spousal caregivers in your community. Her son should be seen by a Dr. who specializes in Down Syndrome, if such a specialist exists. I have read that as people with Down Syndrome age,they often display signs of Alzheimer's disease. So it's possible that an AD medication may help him. Or some other type of mood regulating drug may be helpful. She has had a difficult life, and it would be worth her while to hunt for a Dr. who can make her son more manageable so they can have quality time together. A call to the Down Syndrome Association would be a good starting point. Best wishes, Dorothy


 







 

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