Caregiver.com

For About and By Caregivers
 


 
Subscribe to our bi-monthly publication Today's Caregiver magazine


  + Larger Font | - Smaller Font
 



CARENOTES | Past Carenotes | Discussion Forum | Let's Talk

Carenotes

Welcome to CareNotes. In this special section we will feature a reader's letter and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to respond to this letter, simple follow the link provided at the end of the letter and add your comments and thoughts to our CareNotes Board.

This Week's Carenote - 3/3/10

After caring for my companion for 9 years following his severe stroke I am feeling burned out!! He wasn't expected to live and is now paralyzed on his right side and in a wheelchair. He has aphasia and it is hard for him to communicate. Although not married we had been dating for 10 years at the time of his stroke. We sold his house and he came to stay with me in my condo. Otherwise he would have gone to a nursing home. I am unable to find anyone to stay with him for a few days so I could have some respite. Does anyone know of any organizations in Ma. through which I could find a caregiver? He is 74 now. I would be so thankful for any suggestions.


Reply to Letter  |  View Comments  |  Past Carenotes |  & Discussion Forum

View Comments

Name: Jill
Location: Watseka, IL
Date: 03/03/2010
Time: 06:48 AM

Comments

I work for the Caregiver Advisor Program in our town. My funding comes from the Area Agency on Aging. I looked up information on your local AAA and this is the website i came up with. I hope it helps you. Good Luck as caregiving is a hard job and everyone deserves a break now and then. http://www.wmeldercare.org/


Name: Twila Westphal
Location: Temple Texas
Date: 03/03/2010
Time: 07:19 AM

Comments

I care for my dad who is exactly like your companion & I applaud you for doing this for 9 yrs., I've been at it for 4. I've found a couple of nursing homes here that will do respite care--you might look into that. Was your companion ever in the military?? You could get into the VA health care system & there's help thru them. I also have found a helper so that I can go to lunch w/friends, etc. she works the 2-10:00pm shift at a local nursing home--you might try to find someone like that to help you out--it's been a lifesaver for me!! Check with your Area Agency on Aging also. Best of Luck, Twila if you'd like to connect my e-mail: txrose90@hotmail.com


Name: Laura George
Location: Loganville, GA
Date: 03/03/2010
Time: 07:49 AM

Comments

Here's a list of places that can be Googled for their numbers: Jewish Family Services (found at community centers generally); Center for Independent Living aka Independent Living Center; Stroke Support Groups and since he has paralysis contact the National Spinal Cord Injury Association and they should be able to give you some ideas as well.


Name: Roxanna
Location: Champaign, IL
Date: 03/03/2010
Time: 08:11 AM

Comments

Find your local Area Agency on Aging and ask for their Caregiver Support worker. She will be able to assist you in finding some help for Respite.


Name: Linda
Location: Antigo
Date: 03/03/2010
Time: 09:14 AM

Comments

Check with your Area on Aging or your county Department on Aging. They may have a program that provides "chore" services including respite. Workers are directly paid for their services by the client. The Aging unit merely makes the referral of reliable individuals that will provide services. If finances are an issue, check with your Dept. of Social Services. They have long-term programs that can provide in home services. If affiliated with a church and you have a parish-nurse program, they may be able to provide volunteers for respite. Good luck and you are to be commended for caring for your companion of all these years.


Name:
Location:
Date: 03/03/2010
Time: 11:25 AM

Comments

Contact the Area on Aging 1B for your area. Also, if he qualifies for Hospice some organizations do offer respite for caregivers.


Name: rcdeno@hotmail.com
Location: Escanaba, Michigan
Date: 03/03/2010
Time: 04:53 PM

Comments

You could try www.sittercity.com


Name: howard spiro
Location: portland, or
Date: 03/03/2010
Time: 07:30 PM

Comments

I cared for my late wife for 13 years, however I found help via the adult center listings, hospital social worker, county health dept. and church groups. There are many organizations that have contacts with individuals that would like to 'work' and help.


Name:
Location:
Date: 03/04/2010
Time: 09:14 PM

Comments

Try Comfort Keepers, also call your county human services dept they should have a list, hospitals are usually have a social worker that would have this information also. Good Luck to you. I've been caring for my husband by myself for the last 5 yrs. I've just hit the caregiver burnout stage. 9 yrs? wow how you made it that long is amazing. hang in there!!


Name: LaDonna
Location: Missouri
Date: 03/09/2010
Time: 10:49 AM

Comments

If your companion was a War Time Veteran who served at least 90 days of active duty with at least 1 day during wartime, he might be able to check with the Veteran's Administration to see if he would qualify for a program called Veteran's Aid and Attendance Pension. This is a program - to my understanding that helps wartime veterans who have non war related disabilities remain in their homes, but the pension has to be used specifically for in-home care. Hope this helps.


Name: Denise
Location: Connecticut
Date: 03/10/2010
Time: 01:16 PM

Comments

I have been in a similar situation with my grandfather. I used Home Helpers and they were great! Very professional and reliable. You can check their website at Homehelpers.cc


Name:
Location: Ohio
Date: 03/10/2010
Time: 07:16 PM

Comments

Contact Comfort Keepers at www.comfortkeepers.com this agency had Caregivers available for 24/7 care. You can locate a local office from their site. They give free assessments to find out what his needs/your needs are. If he was in the military, check with the local VA Office to see if he qualifies for any benefits. Also the local Senior Center should have some info. His Doctor should be able to recommend a local Home Health Care agency.Since he is disabled he should be receiving some Home Health Care benifits. What about a nearby Nursing Home? The Social Worker there should be able to help you with info. Contact a nearby Hospital and talk with the Social Worker there too for info..How about a local nursing school/college. There might be some students who would like to earn some money, they could be studying while he is sleeping etc.


 







 

Join our Group or become
 a
Fan below

Caregiver on Facebook

   Follow us on Twitter

You TubeFearless Caregiver Channel