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Welcome to CareNotes. In this special section we will feature a reader's letter and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to respond to this letter, simple follow the link provided at the end of the letter and add your comments and thoughts to our CareNotes Board.

This Week's Carenote - 12/03/09

There are no support groups in my area for caregivers and I would like to start one. 

Any suggestions on how I can get this started?


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Name: Sharon
Location: Minnesota
Date: 12/03/2009
Time: 12:55 PM


You may want to check and see if any of the local churches have a Parish Nurse program. Another suggestion would be to contact a local non-profit organization that assists the elderly population.

Name: Maryan Daily
Location: Dallas, Pa
Date: 12/03/2009
Time: 06:01 PM


May I wish you good luck with starting a support group - it really is easy. I started one 5 1/2 yrs. ago , and it has been a huge success. Call the Alz. Assoc. they should be able to give you all kinds of tips/help. Make sure you get a place to have your meeting - either in a nursing center, hospital, or a church - centerally located. The biggest problem is to advertise, get articles written in newspapers, radio, TV (get interviewed if possible), put up signs in all hospitals, nursing centers, grocery stores, etc. and even Dr.'s offices. Be sure they know what you sre doing, they may refer patients. When this is settled then hit the computer and gather all info you can get about Alz. caregivers. Print them out and create folders to hand out to all members. Have a card printed up with the hr., date, your name and phone/email. Enclose them in your folder. Alz. Assoc. will have lots of fliers for you to hand out, too. Be sure you read up on everything yourself. It's nice to have speakers, but we only have 4 a year, since my people (about 30 ) like to discuss among themselves. Be sure each person gets their turn to speak!! I often will follow up with phone calls in about 10 days for "help", or suggestions. Keep putting signs up and announcements in newspapers each month. Have the newspaper come to take pictures at your first meeting. That is really helpful ! The rewards are so great - for you and the others. I had my group meet at 11 a m so that older people could come - most don't drive at night, or they can't get "baby-sitters" at night. Those that are able, go to lunch afterwards, just to relax. They LOVE it. God Bless you , and good luck.

Name: Jane Mades
Location: Wellington, FL
Date: 12/03/2009
Time: 09:06 PM


Go to your local churches, every denomination , your local newspaper, your town council and announce your intentions, flat out ask for help, state up front what you are trying to deal with, remember there are a lot of things in common, and anyone out there who is trying to cope with anything similar will reach for the leader that you are. God bless and good luck.


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