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Welcome to CareNotes. In this special section we will feature a reader's letter and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to respond to this letter, simple follow the link provided at the end of the letter and add your comments and thoughts to our CareNotes Board.

This Week's Carenote - 09/04/08

I was recently  in the doctor's office with my mother who was  diagnosed with Neurosarcoidosis.  I have been her caregiver for the past two years, and it has been hard at times.  I read the article about the young lady who went home after 20 years to care for her father who had Alzheimer's, it struck me hard, because my husband and I have chosen, due to finances, to keep her home with us. She gets way better care with us and has yet to have a bed sore! I have had to learn a lot of medical procedures, and I have given up on ever going back to work - not that I had a career, but I did enjoy working part-time.  We recently had a scare with my husband, and I had to be with him for the week, and that is very hard to find help for caring for my mother. 

I guess I am writing because I feel that there is no help out there from the medical field for respite care unless you give up all the funds you have. We have had to overcome many hurdles, and many more to come. Is there any help out there for a family like ours.  We would greatly appreciate it.


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Name: Roxanna
Location: Champaign, IL
Date: 09/04/2008
Time: 06:47 AM


The Area Agency on Aging has a Respite program for caregivers. Asset and income do not matter. Contact the local Area Agency on Aging to get in contact with the Caregiver Advisor in your area to assist you.

Name: Joyce
Location: Montana
Date: 09/04/2008
Time: 07:34 AM


I encourage you to contact the local Area Agency on Aging office. These offices offer information to assist you in locating the services available in your area. Hopefully, there will be respite services available on a cost-share basis. Also, contacting caregiver support groups in your area can be extremely helpful. The AOA office can usually supply contact information for these groups, and local hospitals and medical clinics might also have information. Hope this helps you in your caregiving journey.

Date: 09/04/2008
Time: 03:15 PM


I live in Texas and got Mom broke in the first five years of her living with me which means she only had two thousand dollars in her bank account. After that the human resources came in and started giving me providers starting twenty five hours a week then up to seventy three hours after twelve year of keeping her plus respite care for three days off. She died after fifteen years of having her. I don't know about other states. good luck. Sharincc@

Name: Rena
Location: Presently Louisiana
Date: 09/04/2008
Time: 03:36 PM


In Connecticut I was able to contact the North Central Area on aging. They were wonderful setting up a respite care arrangement for my stepfather and then covering approximately 2/3 of the cost. I'm not sure about Louisiana yet but I do know they have an aging group, I just need to contact them. Check with any nursing homes, physician, social services or even your state legislators. They should be able to direct you in the right direction. Good luck and God bless your for caring for your aging parent at home. Rena

Name: Joyce
Location: Delaware
Date: 09/05/2008
Time: 06:11 AM


Every state receives money from the federal government to help support family caregivers. Contact your Area Agency on Aging and ask about "caregiver help." They generally offer education, respite, help with assistive devices, emergency response systems or even home modifications; usually a combination of a few different things.


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