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May 13, 2014
Issue #713
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From the Editor's Pen Gary Barg • Editor-in-Chief • gary@caregiver.com

Gary Barg


The Henry Winkler Interview

Gary Barg: Let me start by saying, Welcome, Mr. Ambassador.

Henry Winkler: Thank you.

Gary Barg: I know that you have an OBE Knighthood from the Queen of England, but you are also the Ambassador for the Open Arms Campaign to help educate people about upper limb spasticity [ULS]. How did you get involved in the campaign?

Henry Winkler: Well, my mother had a stroke in ‘89 causing upper limb spasticity. I saw what happened to her, and then I saw what happens when you have a brand new tool to help possibly alleviate the upper limb spasticity. From listening to all the doctors I’ve toured with, I’ve learned that upper limb spasticity often develops about three or four months after a stroke when the patient is home. The regular visits are over; maybe even the physical therapy, and the secondary muscles of the arms compensate, take over and seize up. And you’ve seen it a million times. You’ve seen a hand that is crumpled. An arm that is twisted and frozen against the body. A palm that is closed and the finger-nails are growing into the palm. And that is a generalized view of upper limb spasticity. It works on the ego because it’s unsightly.  People judge the body because the body is different  ...more

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 IN THIS ISSUE



When Summer Begins, Outside Workouts Don’t Have to End
By Jennifer B. Buckley

You have been loyal to your outdoor exercise program for months; walking, even when your muscles ached or biking, even when your arthritis acted up. Due to your dedication, your body is strong, your health is good and your endurance is better than ever, then summer approaches and the environmental thermostat begins to rise. Does that mean your beloved outdoor workout has to end when those warm months roll around?  ...more

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Everyday Tasks Made Easier With Accessible Technology
By Patricia Kennedy, RN, CNP

What if vision challenges made it impossible for you to read a computer screen? Or limited dexterity left you unable to type? For many people living with chronic illnesses and disabilities, these questions are in fact realities. Symptoms such as vision impairments, cognitive challenges, and dexterity limitations can make the use of technology difficult and at times seemingly impossible  ...more

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Financial Aid for Eye Care

Many state and national resources regularly provide aid to people with vision problems. The National Eye Institute, which supports eye research, does not help individuals pay for eye care. However, if you are in need of financial aid to assess or treat an eye problem, you might contact one or more of the following programs.

You may also contact a social worker at a local hospital or other community agency. Social workers often are knowledgeable about community resources that can help people facing financial and medical problems  ...more

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CareNotes

From Judy: 
I am trying to care for my sister, 96 pounds and fragile. Three years ago, she had a hip replacement and now has to have a revised hip replacement. She just barely walks. I came from Dallas to cook and clean and take care of her dog. (I brought my 14-year-old blind and deaf dog with me and he had five seizures on our way here. Had to rush him to emergency.)

Nothing I do is good enough or suits her. I opened the blinds too much, I didn't clear the microwave, I didn't wake up at 6:30 a.m. when she yelled at me to go the bathroom. I am at my wits end and am resenting her. I miss my friends and grandchildren in Dallas. She is even bad mouthing me to her two friends. If she has her surgery in Dallas, after therapy, she will be staying with me indefinitely. She will have my room and I will have to sleep on the floor with a very bad back. What to do?

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