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Fearless Caregiver Newsletter

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Fearless Caregiver Newsletter
 Tuesday August 9, 2011 - Issue #46

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From The Editor

Gary Barg - Editor-in-chief An Interview with Patricia Richardson

Patricia Richardson, star of stage, screen and television, is best known for co-starring with Tim Allen for eight seasons on the ABC TV show Home Improvement as Jill Taylor. Patricia was nominated for a Viewers for Quality Television Award, two Golden Globe Awards for Best Actress in a Comedy, and four Emmy Awards. She also co-hosted the Emmy Awards with Ellen DeGeneres in 1994. Previously, she had starred on a series for Norman Lear called Double Trouble. She also starred in two shows from one of the creators of the Mary Tyler Moore show, Allan Burns: Eisenhower & Lutz with Scott Bakula and FM with Robert Hays. Since her fatherís diagnosis, Patricia, a mother of three, has been a strong caregiver advocate for people living with progressive supranuclear palsy (PSP). She also serves as the national spokesperson for CurePSP.

Patricia recently sat down with Editor-In-Chief Gary Barg to talk about family caregiving and support, and the importance of advocacy as a family caregiver.

GARY BARG: I appreciate you talking about your dad.  I think when we talk about our families, and especially people in the public eye like yourself, it really makes a difference and brings people out who may be going through this. It is really a great service that you do.  Could you tell us what PSP is?

PATRICIA RICHARDSON: Progressive supranuclear palsy (PSP) is a neurodegenerative brain disease that has no known cause, treatment or cure. It affects nerve cells that control walking, balance, mobility, vision, speech and swallowing. We used to say movement disorder, but we have decided now to refer to it as a disease.  Thatís what it is and when you say a movement disorder, it does not sound as serious and deadly as it in fact is.  It is a fatal disease.  It is a fatal brain disease...continued

Take care

Gary Barg

CMT-Charcot-Marie-Tooth Channel

Feature Article

Ovarian Cancer: The Caregiver's Role

By Sandra Ray, Staff Writer

The American Cancer Society reports that ovarian cancer is the eighth most common cancer among women today. About three percent of all cancers in women are some type of ovarian cancer. Unfortunately, ovarian cancer ranks among fifth in cancer deaths, primarily due to the fact that it is hard to detect until it has advanced beyond the ovaries into other areas of the body...continued

Shire Brave Awards

Guest Column

When Caregiving is  Not Enough -
Finding Good Homecare
By Leah M. Pavela, LCSW

Home health care, also known as domicilary care, is care provided in oneís own place of residence.  This can include skilled nursing services, speech-language pathology, physical and occupational therapy, home health aide services, as well as medical social services and the provision of durable medical equipment such as wheelchairs or walkers for use in-home when ordered by a licensed physician...continued

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Heat Stress in the Elderly

Elderly people (that is, people aged 65 years and older) are more prone to heat stress than younger people for several reasons:

  • Elderly people do not adjust as well as young people to sudden changes in temperature.
  • They are more likely to have a chronic medical condition that changes normal body responses to heat...continued

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My mother was diagnosed with dementia and paranoia. My father is 81 years old and in fair health. He wants to correct my mother when she says something incorrect and he has to be right about everything. My mother accuses him of stealing from her. My dad calls and complains because he is tired of being called a thief. I tell him to just let it go, but he wonít. I sometimes feel he doesn't want to take full responsibility for my motherís care, and tries to make me feel guilty because I'm not there all the time. Does anyone have any advice for this? Any suggestions would be appreciated.


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Inside This Issue:

From the Editor
An Interview with
Patricia Richardson

Feature Article
Ovarian Cancer: The Caregiver's Role

Guest Column
When Caregiving is† Not Enough - Finding Good Homecare

Heat Stress in the Elderly †


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Educate yourself & other caregivers on any medication given to a loved one. The internet is wonderful to help you...continued

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