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Fearless Caregiver Newsletter
 Tuesday June 28, 2011 - Issue #40

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From The Editor

Gary Barg - Editor-in-chief An Interview with Patty Loveless

Award-winning music star Patty Loveless is known as one of the world's greatest country singers. The Kentucky-born singer grew up in a small town and climbed her way to the top, recording numerous hit albums and singles. She has had more than forty singles on the Billboard Hot Country Songs charts, including five Number Ones.

Patty is also one the celebrities bringing attention to the challenges of living with COPD, Chronic Obstructive Pulmonary Disease, that took the life of her sister at only 48. Editor-in-chief Gary Barg spoke with Patty about the challenges of caregiving, COPD and her focus on early detection and treatment of the disease.

Gary Barg:  I know that you’ve been personally affected by COPD—your sister, your dad, your friends.  What message would you want to tell our readers about COPD awareness?

Patty Loveless:  I think more than anything that I just would like to tell them that it’s the fourth leading cause of death in this country right now and there are possibly 24 million people walking around with it and they don’t even know they might have some form of COPD.

COPD stands for chronic obstructive pulmonary disease and a lot of people that I’ve been meeting have been coming up and talking to me about the symptoms, like shortness of breath. I’m trying to encourage them to seek treatment if they are at risk and I’m really trying to get them to take the five question screener  and not to be afraid.  It’s a relief when you know what you’ve got to deal with...continued

Take care

Gary Barg

CMT-Charcot-Marie-Tooth Channel

Feature Article

It's In The Genes

By Jennifer Bradley, Staff Writer

Any diagnosis of any disease is scary. When a loved one finds out it’s hereditary, the unknown becomes even more concerning.

Neuropathy is a disease of one or more nerves that leads to weakness and wasting of muscles. Most often, this affects muscles below the knees and in hands. Hereditary neuropathy is passed from parents to children. For some types, the genetic defect is definable and can be addressed early on...continued

Shire Brave Awards

Guest Column

Functional Flexibility Activities for Older Adults
By Lori Peppi Michiel

For aging adults going from inactivity to activity, flexibility training may offer a good start towards a healthy lifestyle. This type of training may lack the high profile of cardiovascular exercise and strength training, but it can improve range of motion, decrease pain and soreness after exercise, improve posture, and decrease muscle tension. More importantly, stretching can make the difference in comfort when performing tasks such as putting a shirt or blouse on in the morning or reaching for a cup of tea or coffee...continued

Fearless Caregiver Conference


Top Ten Ways To Care For Yourself
  1. Keep a diary. Start today. Describe your fears as well as your hopes, the reality of what each day is like, Don’t be afraid to write about the losses, big or small.

  2. Stick with your diary. Let yourself record the little victories, go back and review the earlier months and years. Notice the personal, physical, emotional goals and successes you and your loved one have achieved...continued

Fearless Caregiver Guides
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Hi Gary,
I get the FCG newsletter and really enjoy it.  Thanks for making available such an outstanding resource for caregivers.  Momma is almost 90 and has Alzheimer’s.  She'd brush her teeth and rinse out with mouthwash for a while.  Then she'd allow us to do it.  Now, she just bites down on the toothbrush and swallows the toothpaste and mouthwash.  We give her lots of liquids and fruit like apples and pears to crunch down on.  She still is eating well for the time being.  However, food is lodged in her teeth.  She needs a good cleaning.  She sometimes holds water/liquid in her mouth.  I believe she's trying to swish the liquid in her mouth to clean it.  I know it must be very uncomfortable for her.
I called her long-time dentist to find out if there was a special procedure for treating such patients.  He has no clue.  Her doctor didn't have a solution either; just trying to clean her teeth while she's medicated.  What does one do?  Can she be sedated and then have her teeth cleaned?  Is there is a specialty dentist out there that deals with this problem?  I'm sure it must be pretty common.  I can't believe we're the only ones going through this.
Any help would be most appreciated.



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Inside This Issue:

From the Editor
An Interview with
Patty Loveless

Feature Article
It's In The Genes

Guest Column
Functional Flexibility Activities for Older Adults

Top Ten Ways To Care For Yourself 


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