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Thursday July 7, 2011 - Issue #545

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From The Editor

Gary Barg - Editor-in-chief 

Summer of Respite 2011

Now that the summer is in full swing, it is time to consider how to give a break to the most important person in your loved one’s life – you. Turn to the caregiver sitting next to you in the doctor’s waiting room and ask what they are doing to take some time for themselves. 

Email me your own respite tips to share within this column.  If everyone sends their favorite tips, I’m sure there will be plenty of interesting ideas for all of us to add to our own lists. For those who think that respite is an impossible dream, I’m going to jump-start this list with great ideas from family caregivers...continued

Take care

Gary Barg

CMT-Charcot-Marie-Tooth Channel

Silent Call - Stay Safe in Your Own Home


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Feature Article

Finding Support for Hereditary Neuropathy

By Trish Hughes Kreis

Hereditary neuropathy is a group of disorders affecting the peripheral nervous system (sensory and/or motor functions) and is passed down through families.  There are hereditary neuropathic disorders affecting only the sensory functions or only the motor functions but there are also hereditary neuropathic disorders affecting both sensory and motor functions.  The most common hereditary neuropathy, which affects both sensory and motor functions, is Charcot-Marie-Tooth (CMT), named after the three doctors who discovered it. ...continued

Guest Column


By Linda Lee Albert

My husband, Jim, had no intention of retiring. He was never a man who longed to replace his office for the golf course - who pictured himself leaving his native Michigan for warmer climates. He was a man who considered it a worthy challenge to maneuver his car without mishap in the kind of lake effect snow and ice for which we were famous, and who never looked out the window during our very long winters and fretted over the gloom and absence of sun for which we were also well known....continued


Your Home Health Care Aide:
Establishing A Positive Relationship
by Kim Champion 

You've made the decision to let an aide come into your home to assist. That was hard enough. Now you re getting apprehensive about what to expect when the aide arrives for work. If you don't have experience with in-home assistance, all sorts of "worst case scenarios" are whirling about in your head. And then there are the questions. What should you do if you don't like the aide? ...continued

Share your tip, advice resource or observation.

Sharing Wisdom - Caregiver Tips

From  Beth in Pennsylvania
Given to me by a friend:  Use reflective tape at night to direct an elderly person to and from the bathroom. Apply tape to the floor and have them practice following the reflective tape so they won’t get lost.

From Sara in Louisiana
My husband is patient of a neurologist. Today he had an appointment and didn't see the need for me to be there. It was a good idea for me to talk to the doctor as my husband forgot about what happened on Easter. The doctor was glad he heard about this from me. He said I am welcome any time and you can be sure I'll be at every appointment from now on. My husband has a brain injury and has short-term memory loss. He doesn't tell me much about his spells and I have to hear him tell others on the phone or when someone comes to our home. My first 911 call was not too long ago. My tip is, if you are new to caregiving, go to the doctor’s office even if your loved one doesn't want you to be there, so you can tell the doctor what you know. The doctor will welcome any and all information you can provide about your loved one's illness.


The best ideas and solutions for taking care of  your  loved one often come from other caregivers.  Please post your ideas and insights and we will share them with your fellow> Support Group Directory. Click here for information about any caregiver support groups in your area.

Caregivers need your help. Please add information about your local support groups to our Support Group Directory. Include the name of the group, where and when it meets, city and state and support group leader contact information.

Have an idea for an article? We are always looking for contributing writers. For more information contact

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Inside This Issue:

From the Editor

Summer of Respite 2011

Feature Article

Finding Support for Hereditary Neuropathy
Guest Column



Your Home Health Care Aide: Establishing A Positive Relationship  
Sharing Wisdom



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Educate yourself & other caregivers on any medication given to a loved one. The internet is wonderful to help you...continued


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