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Thursday April 28, 2011 - Issue #535

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From The Editor

Gary Barg - Editor-in-chief 

The Seven Ds

With Mother’s Day around the corner (Hi, Mom!), I wanted to take a moment to thank another kind of parent who (as much as mothers) richly deserves our appreciation. These folks enliven each Fearless Caregiver Conference and I am honored by their attendance. I am talking about grandparent caregivers.
So many times, the causes for grandparent caregiving are attributed to what I call the Seven Ds—Death, Disease, Divorce, Disinterest, Depression, Dollars and Drugs.  This past decade in particular has seen a marked rise in grandparents acting as parents across the board. Often, they are the first safety net for children who are abandoned and whose parents are deemed unfit due to drugs, alcohol, violence or mental illness. So often, the moms and dads of these kids aren't much more than babies themselves...continued

Take care

Gary Barg

Incontinence Simplified


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Feature Article

Clinical Trial Rundown

By Jennifer Bradley, Staff Writer

Every caregiver hopes for a miracle for their loved one with Parkinson’s disease. The promise of new drugs or therapies making a difference is exciting.  A caregiver may encourage their loved one to take the jump and become part of a clinical trial, in hopes of seeing a positive outcome. The decision, however, is ultimately left to the person living with the disease....continued

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Guest Column

Alzheimer's: Stepping Into The Leadership Role

By Daniel Kuhn, LCSW, MSW

Since the person with AD no longer possesses the mental skills to be completely independent, a special brand of leadership is called for. At least one person must assume overall authority for ensuring the well-being of the person with AD but it is best to include others too if at all possible. Much work is involved in addressing basic physical needs like food and shelter as well as the psychological and social needs discussed in the previous chapter...continued

Leadership Summit


Eight Tips to Managing Caregiver Guilt
By Dr. Vicki

Guilt is a common feeling in the landscape of caregiving. Guilt can propel you to be the best you can be…or it can immobilize you.

For caregivers, painful feelings — such as guilt, sadness and anger — are like any other pain. It’s your body’s way of saying, “Pay attention.” Just as the pain of a burned finger pulls your hand from the stove, so, too, guilt guides your actions and optimizes your health...continued

Share your tip, advice resource or observation.

Sharing Wisdom - Caregiver Tips

From Debra
One of the things I didn't see in the recent articles was incontinence that is due to forgetting the steps involved.  My husband with Alzheimer’s has started to pull down his jeans/pants, but then forgets his briefs.  If I wasn't in the hall one morning, I would have never known that it would be as simple as walking behind him and reminding, very gently, to pull his briefs down when he sits on the toilet.  This has saved me from many cleanups.  Thanks for your time.  Take care and peace.

From  Phyllis in Sulphur, OK
We have a meeting where we each share our problems, grief, guilt, etc. and it really seems to be helping us. We meet the 2nd Tuesday of each month at our local hospital.
I was a caregiver for my mother for 10 years during her dementia with sundowners. I learned that playing dominos helped me watch her progression. In the beginning, she knew to count the points. She did this for a couple of years. She ended up playing for an hour and all of a sudden would look at me and say, "What am I supposed to do?" She would forget how to even play dominos. I saw the biggest change during the last eight  months of her life.


The best ideas and solutions for taking care of  your  loved one often come from other caregivers.  Please post your ideas and insights and we will share them with your fellow caregivers. Support Group Directory. Click here for information about any caregiver support groups in your area.

Caregivers need your help. Please add information about your local support groups to our Support Group Directory. Include the name of the group, where and when it meets, city and state and support group leader contact information.

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Inside This Issue:

From the Editor

The Seven Ds

Feature Article

Clinical Trial Rundown
Guest Column

Alzheimer's: Stepping Into The Leadership Role


Eight Tips to Managing Caregiver Guilt
Sharing Wisdom



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Educate yourself & other caregivers on any medication given to a loved one. The internet is wonderful to help you...continued


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