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 Thursday March 17, 2011 - Issue #529

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From The Editor

Gary Barg - Editor-in-chief 

An Interview with Lonnie Ali

Lonnie Ali is the wife of heavyweight boxing champion Muhammad Ali, a Parkinson’s disease caregiver and a tireless national caregiving advocate.  Gary Barg, Editor in Chief, recently sat down for a wide-ranging interview with this champion for family caregivers.

Gary Barg:  It’s impossible to talk about Mohammad Ali and not talk about positive thinking. What role do you think attitude plays in the well-being of a caregiver of someone living with Parkinson’s disease?

Lonnie Ali:  It’s important for all caregivers to keep a very positive attitude and to realize that this is a disease that can be managed. It’s not something you have to be afraid of; the more you know, the more empowered you become.  If you have a positive attitude, you can put things into perspective and actually become a better caregiver.  Keeping a positive outlook on things, and trying to convey that to the Parkinson’s patient as well, is extremely important in the management of this illness. ..continued

Take care

Gary Barg
Editor-in-Chief - 877-997-8839


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Feature Article

Young Cancer Spouses

By Sandra Ray, Staff Writer

Young and cancer are two words we don’t often piece together, unless we’re watching fundraisers for hospitals for children with cancer.  Yet, there are more and more people becoming afflicted with various types of cancer who are recently married, or have started the road to raising a family...continued

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Guest Column

Caregiving In Times Of Uncertainty

By Eric Gnezda

There’s a woman in New England who directs a staff of caregivers. She’s very committed to her work, but as she tells it, it got to the point where she dreaded going to social functions because of the inevitable question, “What do you do for a living?” Every time she answered, it seemed, someone would respond with something like, “Gee, that must be depressing…” continued

Today's Caregiver magazine - Digitial Edition

January/February Issue


Parkinson's Disease: Tips for Caregivers
By Sandra Ray, Staff Writer

With more than one million people affected with Parkinson’s disease in the United States today, there are many issues that caregivers are either facing now or will face in the future. Parkinson’s disease is a slow, degenerative disease manifesting itself in stiff muscles, difficulty walking, and other movement-related issues over time...continued

Share your tip, advice resource or observation.

Sharing Wisdom - Caregiver Tips

From Pat in PA

I had our home remodeled by adding an accessible bathroom, widening doors and adding wood floors. I consulted a Universal Design Consultant and did a lot of research on my own. The lesson I learned is there is no perfect plan. The shower is awesome; but while wooden floors in the main part of the home are easy to roll over, they create other issues. They scratch with various equipment in use. Chair transfers are more difficult due to things slipping. The dining room table moves as the wheelchair gets pushed in. I have tried so many products and it is still a problem. Each situation is unique. One thing I came up with on my own was pocket doors to bedroom and bathroom. I love them. The floors are my biggest area of distress. The manufacturer says, “We don't guarantee against scratches.” I'm not sure what the 25-year guarantee is for, but it’s not scratches! In antiques, scratches add beauty...not when the floor is only one year old. But in the scheme of life, it is minor (or so I keep telling myself, ha ha). I believe having the plans reviewed by a Universal Design Consultant is worth the fee. Good luck to all attempting a project of this magnitude while being a caregiver. Can you spell ADAPT? I hope so. Obviously, a sense of humor is important. God bless us one and all!

From Anita in NJ
I just added a stair lift to extend my parents’ stay in their home. I was quite nervous about this because their home has narrow stairs and I wasn't sure any equipment would fit. But a store in Milburn had some friendly folks who put up with me for three visits.  They talked me through the process. In the end, it was so easy and I'm sure it will extend my parents’ time in their home much longer than they would have been able to stay otherwise. They love that house.

The best ideas and solutions for taking care of  your  loved one often come from other caregivers.  Please post your ideas and insights and we will share them with your fellow caregivers. Support Group Directory. Click here for information about any caregiver support groups in your area.

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Inside This Issue:

From the Editor

An Interview with
Lonnie Ali

Feature Article

Young Cancer Spouses
Guest Column

Caregiving In Times Of Uncertainty


Parkinson's Disease: Tips for Caregivers
Sharing Wisdom



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Educate yourself & other caregivers on any prescription drugs given to a loved one. The internet is wonderful to help you...continued


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