Caregiver Newsletter

Produced by Caregiver Media Group, publishers of  Today's Caregiver magazine and

Thursday January 29, 2009 - Issue #417

Welcome to the latest edition of the newsletter.

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From The Editor

Gary Barg - Editor-in-chief 
A Spoonful of Sugar, Indeed

Further proof of the distance between my seat and the seat of power: A law to delay the nation’s transition to digital television (that I mentioned in the first newsletter of the year) is wending its way through congress as I write this missive. By the time you read this, the house will have voted on supporting (or not) a delay from late February to June. The senate already approved the delay. To most of us, this means little; but to those with analog television sets, you will get four more months to procrastinate.

This past weekend, I got together with some friends of mine from Canada who I haven’t seen for many years. We met at a restaurant on Fort Lauderdale beach; but for those living through this ice storm that is making its way across the country, you can pretend that we were in the Yukon Territory. Anyway, as we sat watching the beach (iceberg), the topic of conversation came around to patient advocates. Many hospitals are starting to offer customer service through a staff person called a patient advocate. One of my friends had been in and out of the hospital over the past few years and was talking about how much better his hospital stays had become once his hospital hired a patient advocate. Then again, he believes that his situation may have been somewhat unique since (seriously) his patient advocate's name is Julie Andrews.


Please share your stories about dealing with hospital patient advocates.

In Miami, join Catwoman at the Parrot Jungle (and watch the feathers fly.) Julie Newmar is our keynote speaker at the third annual Miami Fearless Caregiver Conference.

Other upcoming Fearless Caregiver Conferences


Take care

Gary Barg

Clinical Trial Finder - COPD
Prevent COPD exacerbation

Let's Talk About It
What caregiving resolutions have you made this year? 

To participate in this this month's discussion, click here.


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Emphysema Trial

Caregiver Bookclub
Take a look at the new books in our bookclub.  Listen to the interview with two of the authors.

Feature Article

Community Transportation Programs-
Helping with Dignity and Caring  

By Sandra Ray, Staff Writer

There are a multitude of programs available to help the elderly and disabled reach appointments, go shopping, and perform other tasks associated with daily living. Not all of these are easily accessible or easy to find...Continued

Additional Article
Respite: Enjoy a Guilt-free Time-out

By  Kate Murphy, RN

Why is it that the words “respite” and “guilt” seems to go hand in hand? Why do we as caregivers feel we are somehow failing our loved one by admitting that we need help, need time to recharge our batteries, or just need time to play a bit? ....Continued

Today's Caregiver magazine - Digitial Edition

Today's Caregiver magazine  

Guest Column
Understanding Dysphagia
By Jeri Logemann, Ph.D., Charles A. Stewart, M.D., Jane Hurd, MPA,
Diane J. Aschman, MS, Nancy L. Matthews, MA

At the age of 78, Maxine was a poster girl for an active senior lifestyle. She loved being the unofficial social director of her assisted living community in the Texas Hill Country, organizing shopping trips to San Antonio and calling the numbers at the daily bingo game.  ...Continued

(Do you have a story? Tell us.)

Sharing Wisdom on

Tips from Family Caregivers

The best ideas and solutions for taking care of  your  loved one often come from other caregivers. 

Please post your ideas and insights here and we will share them with your fellow caregivers.



Huntington's Disease: Tips for Coping
By Heather Pratt

Some of the suggestions I have for living with HD are:

Keep life simple - Rest, Exercise, Nutrition, A daily laugh Carry earplugs with you when you are out (Some people with HD are sensitive to noise)...Continued


I live in Tooele, Utah and recently my adult brother came to live with me.  He had a traumatic brain injury in fall of 2003.  With all of the "mishaps" that has happened to him, I have not only taken a role of caretaker, but also as an advocate.  Is there any financial relief in my state?  Or do you know of any agency where I could seek help. 

Thank you for your prompt attention.

Answer This Week's CareNote Support Group Directory. Click here for information about any caregiver support groups in your area.

Caregivers need your help. Please add information about your local support groups to our Support Group Directory. Include the name of the group, where and when it meets, city and state and support group leader contact information.

Have an idea for an article? We are always looking for contributing writers. For more information contact

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Inside This Issue:

A Spoonful of Sugar, Indeed
Community Transportation Programs
Guest Column
Understanding Dysphagia


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