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Friday July 18, 2008 - Issue #388

Welcome to the latest edition of the newsletter.

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From The Editor

Gary Barg - Editor-in-chief 

Magic Moments

Yesterday’s Fearless Caregiver Conference in Boynton Beach, Florida marked the first event of the thirteenth year since the launch of Today’s Caregiver magazine.  And the day did not disappoint.

The members of the Q and A panel had expertise in nursing, hospice care, depression management, insurance, trusts and personal finances. But as usual, it was the interaction between the caregivers in the room that provided the most magic. The concept of Fearless Caregivers sharing wisdom was in full swing as new networks were being formed between caregivers of children with disabilities, grandparent caregivers and those with senior loved ones. Advocacy was the big topic of conversation, so if you are reading this from Tallahassee or Washington, I would advise you get ready for some educated and motivated constituents to come a ‘calling.

To further illustrate the theme of advocacy, our luncheon speaker was newly minted State Representative, Mark Pafford. Mark gave an overview of the state’s political system and presented a wide variety of hands-on tips for getting responses from the halls of congress. We were proud to present a Community Fearless Caregiver award to Mary Barnes, CEO of Alzheimer’s Community Care for their work over the past twelve years, who left us with the poignant message that seniors in Florida (and by extension, across the nation) should not be ashamed to seek needed support, since rather than costing the state money, they add millions of dollars annually to the state coffers.

While talking about journaling, I read a story I wrote about my grandfather, in which I retold a few of the countless memorable times we spent together. Afterwards, a caregiver came up to me and told me that she had an inspirational thought as I was speaking. She was going to travel with her husband who is living with Alzheimer’s to visit their kids. She wants to have each of their children write a short story about a memorable time they had spent with their dad and then read it to him. She is convinced that this exercise will be as beneficial to her grown children as it will be to her husband. And I whole-heartedly concur.

All in all, not a bad way to enter our teen years.

Take care

Gary Barg

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The Savvy Caregiver

Let's Talk About It - July 2008
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Feature Article

Post Polio Syndrome

By Henk Snyman, MD

Throughout the 1940s and 1950s, polio emerged as a devastating epidemic that affected thousands in the United States alone...Continued

Additional Articles:

Safety Begins at Home: Emergency Escape Plan for
Loved Ones with Mobility Challenges

By: Jennifer Wilson, Staff Writer

Children are usually taught about fire safety and disaster preparedness in school. ...Continued


Caregiver Story
Looking Into Assisted Living Long Distance

By J Lang Wood  

It was sometime late in 2003 that I realized something had to be done with Mom. . ...Continued

(Do you have a story? Tell us.)


Tips and Techniques for Dealing with Stress
By Dr. Rita Nachen Gugel

Change is an expected part of our daily lives today. Dealing with it so that YOU control IT rather than vice versa is an important and positive force in controlling your life. Try a few of these tips.....Continued



I am the caregiver of someone with "Alzheimer's".  I have a full-time job, but still am not able to meet all of our financial obligations, or have work done to our home in order to make it more suitable down the line for my mother.  I've tried working part-time, but that doesn't work because my mom needs attending to more often now.

Several people have mentioned to me about receiving financial assistance through the government in the form of grants.  I understand that these grants can be as low as $1,000.00, and as high as $5,000.00 or more,  and that they do not have to be paid back.  Can you provide me with more info on this source, or direct me to a place to start researching? 

Thank you for your time.


Answer This Week's CareNote:
carenotes/2008/index.htm Support Group Directory. Click here for information about any caregiver support groups in your area.

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Inside This Issue:

Magic Moments
Post Polio Syndrome
Caregiver Story
Looking Into Assisted Living Long Distance


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