Caregiver Newsletter

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Thursday May 15, 2008 - Issue #379

Welcome to the latest edition of the newsletter sponsored by Precision Foods, the makers of Thick-It® Instant Food Thickener and NEW Thick-It® Purees. 

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From The Editor

Gary Barg - Editor-in-chief

Guilt Edged Stories

There is an extremely long list of things which are simply unfair and undeserved that we caregivers face as we care for our loved ones.  On that list, of course are unhelpful (and sometimes ungrateful) relatives, the financial challenges we face, undeserved shame, sleepless nights and probably the most unfair of all - Caregiver Guilt.  

The irony is that you can feel "caregiver guilt" despite the fact that you have done nothing at all to deserve to feel that way.  In fact your every action when caregiving contradicts the very characteristics of guilt, which according to Wikipedia  is a state in which one experiences conflict at having done something that one believes one should not have done (or conversely, having not done something one believes one should have done).  

Responses to last week's request for Caregiver Guilt Stories:

When have I felt caregiver guilt?  My worst moment was telling myself I didn't want to be a caregiver before I volunteered for my father in law...Continued

 I have felt caregiver guilt for a little over two years and have not been able to resolve it.  I have almost had a nervous breakdown... Continued

After 8 years of taking care of both of my parents by myself, I had a stroke on April 9th of this year...Continued

There are 2 kinds of caregiver guilt.  The first is obvious….its when you should do something and don’t...Continued

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The 2008 Caregiver Friendly Award Winners

Take care

Gary Barg

PS.  Our Respite survey is still available on the home page.

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Feature Article

Thinking About Reverse Mortgage

By Cheryl Ellis, Staff Writer  

Individuals who live in their home, and have no or a very low mortgage balance, may find that a reverse mortgage will supplement income when needed.    ...Continued

Additional Articles:

Today's Rural Caregiving: Managing Mood
Without Medication

By: Linda Lindsey Davis, RN, PhD

Gemma Reilly is a 72 year-old woman who, with her 74 year-old husband Bob, divided her time between visiting four adult children and 10 grandchildren. ...Continued


Caregiver Story
Just Do It and You Get Through It - My Personal Story

By Lois A. Troutman


The title of this article exemplifies a motto I adopted early on in my life as a caregiver. ...Continued

(Do you have a story? Tell us.)


Tips for Buying Long Term Care Insurance
Mary Damiano

The decision to buy Long Term Care Insurance should not be entered into lightly. There are many things to consider and many options available. ...Continued



I am interested in how difficult it is to cruise, travel both in and out of the country with someone on oxygen.

My husband needs it 24/7 and at night with his cpap. When at home he uses liquid oxygen when we are outside of the home and in the house we have the electric concentrators. When we fly we rent the INOGEN which airline's accept. These run on our current not on any foreign current.  What would we use instead of liquid oxygen when we are away from the place we stay? How difficult is it to travel with someone on oxygen? Even on a ship when we would go out of our cabin what kind of oxygen would he use? With liquid he can be away for hours and not need a refill. I am always being negative to any kind of extensive travel because of these issues as I have to do everything and worry about all these things if we should travel. That is not to say we just stay at home we do not. We fly from the east coast to the west 2 times a year and have homes in both places so that all the oxygen equipment is there for us. We went on a day's trip once but I had to take all kinds of bullets of oxygen which is cumbersome and hard to do.

Do you have any suggestions?

Answer This Week's CareNote:
carenotes/2008/index.htm Support Group Directory. Click here for information about any caregiver support groups in your area.

Caregivers need your help. Please add information about your local support groups to our Support Group Directory. Include the name of the group, where and when it meets, city and state and support group leader contact information.

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Inside This Issue:

Guilt Edged Stories
Thinking About Reverse Mortgage
Just Do It...


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