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Friday May 9, 2008 - Issue #378

Welcome to the latest edition of the caregiver.com newsletter.

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From The Editor

Gary Barg - Editor-in-chief

Guilt, No More

Next week marks the tenth anniversary of our Fearless Caregiver Conferences. Since 1998, we have held 67 conferences in sixteen cities around the nation, with a total of more than 25,000 attendees. The events began as a way to bring family and professional caregivers, as well as local and national advocates together for the day. The late television actor Robert Urich was the keynote speaker for that first event, having recently shared his cancer diagnosis and remission on national television. Two things were evident throughout the day, the first thing was that we caregivers love to share ourselves with one another, and the advice shared is as effective and appropriate as could ever be found from any degreed professional.  The reason for this is simple: the family caregiver is the person caring for their loved one around the clock and intuitively creating solutions for the challenges faced on a daily basis. The other thing that was evident that day was that caregivers helping loved ones with differing diagnoses and caregiving situations could learn from one another’s experiences.

As illustration, I recall a luncheon table during that first conference with four caregivers sitting around it. Their main care concerns were (respectively) AIDS, Parkinson’s, Cancer and Alzheimer’s disease. As I listened in on them, they were reveling in the fact that each of them brought different but powerful experiences to the table. The caregiver whose loved one was living with AIDS was talking about managing a difficult medication regime, the Alzheimer’s caregiver was sharing her challenges with the long term care facility in which she had just placed her loved one and the Parkinson’s caregiver was talking of solutions he had come up with regarding his loved ones increasingly limited mobility.

The areas of interest and the skill sets these caregivers brought to that luncheon table were both unique and of specific value to their fellow luncheon companions. Through all of the camaraderie and sharing at the events over this past decade, we have been gratified to hear countless stories of great love, devotion, humor and courage as well as stories involving feelings that that no caregiver deserves, such as caregiver guilt. Although guilt is a real feeling for so many of us, it is one of the many things that I hope we will be able to one day erase from the concerns of our fellow caregivers. As the caregivers at the luncheon learned so many years ago, I think the answer is to share our solutions with one another. So pass the bread and let's start talking: When have you felt caregiver guilt and how have you dealt with it?

HAPPY MOTHER'S DAY!

Register for a Fearless Caregiver Conference

The 2008 Caregiver Friendly Award Winners

Take care

Gary Barg
Editor-in-Chief
gary@caregiver.com

PS.  Our Respite survey is still available on the home page.


 
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Feature Article

When Caregiving is Not Enouth -
Finding Good Homecare

By Leah M. Pavela, LCSW  


Home health care, also known as domicilary care, is care provided in one’s own place of residence.   ...Continued
 


Additional Articles:
 

Charting Your Course
With Parkinson's Disease Care

By: Kristine Dwyer

Caring for a loved one with Parkinson’s disease at home can be like sailing a ship through uncharted waters. ...Continued
 

 
 
Mother's Day Release from Social Security -
Benefits for Caregivers
 
People all over the country are helping their moms save as much as $3,600 per year on the costs of prescription drugs.  You can too!...Continued

Caregiver Story
We All Need Someone We Can Lean On

By Alexander Cathcart 

 

Try a little experiment. Tie your hands to your sides and have someone feed you your dinner.. ...Continued

(Do you have a story? Tell us.)


Caretips

Feeling At Home With Home Care:
Choosing The Right Provider

Home care is a viable and often preferred alternative to long-term hospitalization or other institutionalized care.....Continued

 

Carenotes

Hi,

My name is T and I am 29 years old. I started taking care of my mom, a former RNC in Feb 2005. She had a brain aneurysm and during the clipping had a massive stroke.  It has left her unable to use her left hand/ arm. Her left foot is usually hard for her to pick up, and she has aphasia. I have her to the point where she bathes herself,  lives in an apartment by herself, takes care of 2 cats, cleans and kind of uses email.

Now that I am 9 months pregnant, and my husband I only have one car,  it is much harder. I do her bills online, she takes the metro plus bus, which is for older people, to most of her appointments, and to pick up odds and ends at the store.

But just last week I had to take her to the ER, because she hasn't eaten. My mother though only 59, and a previous nurse...(so she knows better ) is draining me dry. She says she is now eating but  I will find out when I go over.

How do I handle a newborn and my mother.
 

Answer This Week's CareNote:
carenotes/2008/index.htm

 

 


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Inside This Issue:

Guilt No More
When Caregiving is Not Enough
We All Need Someone We Can Lean On

 


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