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Wednesday November 14,  2007 - Issue #353

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From The Editor

Gary Barg - Editor-in-chief

The Supremes

As I was traveling the not-so-friendly sky's earlier  this week, winging my way to our 63rd Fearless Caregiver conference (and the fourth to be held in Connecticut), I enjoyed one of the few pleasures available to me as a traveler these days - reading a multitude of newspapers.  Over the years, I have taken to reading a wide variety of newspapers available in airport newsstands.  This becomes quite interesting on trips with multiple layovers.  I tend to clip the most interesting stories from the Des Moines Register, the Charlotte Observer, The Kodiak Daily Mirror, the New Haven Register, or whatever paper is available in my stopover cities. Not to mention the New York Times, Wall Street Journal and the USA Today.

This past Tuesday, it was an article in The USA Today that caught my attention.  It was about former Supreme Court Justice Sandra Day O'Conner and her husband John, who is living with Alzheimer's disease.  Justice O'Conner resigned from the bench a few years ago to take care of John as his condition worsened.   In yet another example of her dedication, the article told the story of her acceptance of John's new romance with a fellow resident at an Alzheimer's care facility.  I know this story well as  late in the last century,  my grandfather who was also living with Alzheimer's and  fiercely dedicated to my grandmother,  lost the  memories of his old life and began a relationship with a lovely lady in his adult day care center. At first, this was a shock to my mother as well as Gramps new beau's adult daughter, but soon they and the rest of the family began to appreciate this new and unconventional relationship which as with Mr. O'Conner, seemed was good medicine for both of the lovebirds.

I don't know about you, but Justice O'Conner is still pretty darn supreme to me.    

Take care

Gary Barg
Editor-in-Chief
gary@caregiver.com


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Feature Article

Holiday Gift Ideas for People with Alzheimer's
and their Caregivers


According to the 2007 Alzheimer’s Disease Facts and Figures, one out of eight people age 65 and older have Alzheimer’s and nearly one out of every two over age 85 has it. .. ...Continued


 
Additional Articles:
 

Coping with Holidays as a Caregiver

By  Brenda Race

We all know that Holidays can be a very stressful time just in living an ordinary family life... ...Continued



Financing Hope with Modest Means

By Cheryl Ellis, Staff Writer
 

Geneva and her husband struggle each month to make ends meet since she had to leave her job last year to care full-time for her daughter.  . Continued

 
 

Caregiver Story

A Life Forever Altered, Forever Changed

By Sharon Pulido


Do you ever think things are going too good to be true and something bad must happen to compensate?  I have always thought that way.....Continued

(Do you have a story? Tell us.)


Caretips

Eating Habits
Suggestions When Feeding Your Elderly Loved Ones

By Ryan Mackey
 

Alleviate any diversions when eating, and be basic with your meals: ....Continued


 

Carenotes

I was a caregiver for an adult brother with Progressive MS for 16 years and both parents with terminal cancer in their home.  My total focus on continuous primary, daily family care giving was 20 years.  My life was completely wrapped around caring for others while I worked to keep my own existence going very much second.

Four years have passed since I lost my last primary family member and I am still working hard to deal with serious issues and finding little real help and support: loss of purpose, loss of my identity beyond being just a care giver, and having a difficult time coping with this change in my lifestyle and understanding where to start on thinking about myself first for a change.  I try to out think the depression, but progress is slow, if any.

Once you stop being a long-term care giver and have lost much of your social network during those care giving years, the loneliness can be devastating.  It's very hard to explain to others who have not lived this experience.  After awhile you realize you are very alone with your experience.

I want to move on, however, I no longer see life from such a naive viewpoint.  It's hard to get excited about the material culture that seems to drive our world.  Sometimes trying counseling can result in a very shallow experience and advice from someone who has obviously never been in this experience.  I don't want to dwell on this in a long-term support group that keeps raking up old feelings.  I want to find a way to feel more linked to the world, rebuild a social network and help my life move on.

Perhaps I am the only person who is experiencing this phenomenon, but I don't think so.  Where can people who have dedicated their lives to caring for very ill family members go to read, be inspired, or rethink, or regroup their lives after the loss of their loved one(s)?  

 
Answer This Week's CareNote:
carenotes/2007/index.htm

 

 


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Inside This Issue:

From the Editor
The Supremes
Feature Article
Holiday Gift Ideas
 
Caregiver Story
A Life Forever Altered
CareTips
Carenotes


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