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The Philadelphia Experiment
As we approached our 61st Fearless Caregiver conference last
month (our fourth Philadelphia event), I found myself thinking
about what these days have represented to those in attendance at
the previous 60 events. As I conjured up standing in the middle
of so many rooms in so many cities across the nation over the
past ten years, filled with caregivers eager to share themselves
with one another: their experiences, concerns and even fears,
one answer was of course - the sense of shared community created
within those four walls.
Yet, I think that there is actually another significant
answer to consider. It is that throughout the day, it becomes
clear that we caregivers are actually our loved one's best
advocates within the healthcare system and that we can truly be
treated as full partners to those professionals caring for our
loved ones.
Sometime before last month’s event I also started thinking
that caregivers need to be able to be easily recognized for our
important position on the team. Not wearing scrubs or white
jackets, and in most cases not having advanced healthcare
degrees, we still need to be able to be seen for our role as
Fearless Caregivers and for good
 measure,
let people know how strongly we feel about our position on the
team. So we developed
our own uniform, which was quickly embraced by the attendees
in Philadelphia. There are two versions of this uniform, one
which states our position loud and clear and one a little more
subtly. (Guess which one is embraced, 10 to 1 by the caregivers
who request them.)
One caregiver told me she bought two, one type to wear in
public and one to wear whenever she takes her loved one to a
medical appointment. Now, that’s someone not to mess with!
Take care
Gary Barg
Editor-in-Chief
gary@caregiver.com
Register now for one of our Fearless Caregiver conferences:
Fort Myers, FL
New Haven, CT
Treasure Coast, FL
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Take a look.
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Feature
Article |
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Helping Hands:
Monkeys as Caregivers |
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By: Kristine Dwyer, Staff Writer
Minnie, my Capuchin monkey, has made my life so much richer and
fuller. My independence has been increased and I have the security
of knowing ...Continued |
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Additional Articles: |
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Cancer
and Nutrition
What
Every Caregiver Should Know |
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By
Hillary Wright, Staff Writer
If he would only eat more, I know he’d gain the
weight and strength he needs to get better,” says a
concerned wife speaking with her husband’s doctor.
...Continued
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The Male Perspective: Caregiver
Burnout |
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By Judd Lewis Parsons
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Your wife has just been diagnosed with breast cancer. .Continued
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Guest Column |
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Caregiving by Men:
A Husband's Perspective |
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By: Seth B. Goldsmith, Sc.D,. J.D. |
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Families who struggle to care for a
parent across the miles have a unique disadvantage. They
cannot be there to know what is really happening. ...Continued
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Caretips |
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7 emotional and physical well-being
tips for male caregivers: |
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Men account for almost 20% of the caregiver population. In
order for male caregivers to properly care for their loved ones, they
must remember to care for themselves....Continued
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Carenotes |
My mother-in-law has beginning stages of Alzheimer's .She is
a strong minded and very vocal about everything. My father-in-law is getting
worn down daily by her constant badgering. My husband is the only sibling that
helps them. It has affected our marriage and my kids. He is the only one who can
do anything for them. We tried to get daily help in to their house and they
rejected it all several times. I think my husband is going to have a nervous
breakdown over the health of his parents. He will not listen to anyone about
getting some therapy. I don't know what to do.
Answer This Week's CareNote:
carenotes/2007/index.htm
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