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Wednesday, May 2,  2007 - Issue #325

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From The Editor


Lies. Damn Lies and Statistics.

Just in time for the launch of Today's Caregiver magazine and caregiver.com's  "Summer of Respite 2007", our sixth annual extravaganza where we talk, share and  celebrate respite with one another throughout the summer, there seems to be  much to report about on the Respite front. 
 
We celebrate Jill Kagan and her merry band of Respite Warriors on their successful crusade to get the Lifespan Respite Care Act signed into law late last year.  The battle is not yet won since your legislators need to ensure the proper funding of the new law.  Please visit their site to find out how your help is still desperately needed.  archrespite.org/NRC.htm
 
Also, there seems to be a study out of the UK which talks about the value of respite to caregivers, unfortunately they do not seem to see much. Yet, there are competing studies with differing results that the care experts are debating on discussion lists across the internet, as we speak.   As the experts and academics dispute each other’s statistics, I think it would be of great importance for them to hear from the real caregiving experts - family caregivers. 

Please help shed some light on this important topic by sharing your stories of what you are doing to achieve respite and how respite has impacted your lives.    
 
My respite story          


 

Take care
Gary Barg
Editor-in-Chief
gary@caregiver.com
 

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There are new books in our book club.   Take a look.

 

Feature Article

When  MS Means 'Mighty Stubborn'
By Cheryl Ellis, Staff Writer

“I’m glad my MS isn’t too bad.  My life is too busy to have it interfere!”
 
These words could be uttered by many individuals with MS, regardless of how severe the affliction has become in their lives...Continued


Additional Articles:

Multiple Sclerosis: Getting and Managing
Health Care Needs

By Grace Curry

If you are caregiving to a friend or relative with Multiple Sclerosis, you already know how difficult it can be to manage that care.. ....Continued


Don’t Let Depression Get You Down
By Michael Plontz

Caregiving can sometimes be a depressing venture.  Not only does it usually involve someone we love deteriorating before our eyes, our own lives become completely rearranged....Continued

 

Guest Column

ON YOUR BEHALF: Home Hospice Programs 
Are Getting Stronger

By Connie Ford, RN, MPA

When you learn to die, you learn to live. That is the compelling theme of the well-known book, Tuesdays with Morrie.  ...Continued


Caretips

Incontinence: The Caregiver's Role
by Kevin McShane

Incontinence in children is called "training". In adults, it's often called embarrassing....Continued


 

Carenotes

I have a grandson [age 11] who has been diagnosed with Asperser’s Disorder.  He has a difficult time with making and keeping peer or adult relations. 

I am not able to see him on a regular basis. I usually try to get together every month or two.  I need to know if there are particular things than we could do or places we could go that would help him with his disorder. 

I have always thought of him as a loner.  Where can a grandfather go to learn what to do to help this situation?  I live in Boca Raton, Florida.

 

Answer This Week's CareNote:
carenotes/2007/index.htm

 

 


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Inside This Issue:

From the Editor
Lies. Damn Lies
and Statistics
Feature Article
When MS Means
 'Mighty Stubborn'
 
Guest Column
Home Hospice Programs CareTips
Carenotes


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