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Lies. Damn Lies and Statistics.
Just in time for the launch of Today's
Caregiver magazine and caregiver.com's "Summer of Respite
2007", our sixth annual extravaganza where we talk, share and
celebrate respite with one another throughout the summer, there
seems to be much to report about on the Respite front.
We celebrate Jill Kagan and her merry band of Respite Warriors
on their successful crusade to get the Lifespan Respite Care Act
signed into law late last year. The battle is not yet won
since your legislators need to ensure the proper funding of the
new law. Please visit their site to find out how your help
is still desperately needed.
archrespite.org/NRC.htm
Also, there seems to be a study out of the UK which talks about
the value of respite to caregivers, unfortunately they do not
seem to see much. Yet, there are competing studies with
differing results that the care experts are debating on
discussion lists across the internet, as we speak.
As the experts and academics dispute each other’s statistics, I
think it would be of great importance for them to hear from the
real caregiving experts - family caregivers.
Please help shed some light on this important topic by sharing
your stories of what you are doing to achieve respite and how
respite has impacted your lives.
My
respite story
Take care Gary Barg Editor-in-Chief
gary@caregiver.com
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There are new books in our book club.
Take a look.
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Feature
Article |
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When
MS Means 'Mighty Stubborn'
By
Cheryl Ellis, Staff Writer
“I’m glad my MS isn’t too bad. My life is too busy
to have it interfere!”
These words could be uttered by many individuals with MS, regardless
of how severe the affliction has become in their lives...Continued |
Additional Articles:
Multiple
Sclerosis: Getting and Managing Health Care Needs
By Grace Curry
If
you are caregiving to a friend or relative with Multiple Sclerosis, you
already know how difficult it can be to manage that
care.. ....Continued
Don’t Let Depression Get You Down
By Michael Plontz
Caregiving can sometimes be a depressing venture.
Not only does it usually involve someone we love deteriorating
before our eyes, our own lives become completely rearranged....Continued
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Guest Column |
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ON YOUR BEHALF: Home Hospice Programs
Are Getting Stronger
By Connie Ford, RN, MPA
When you learn to die, you learn to live. That is the compelling theme of the well-known book, Tuesdays with Morrie. ...Continued |
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Caretips |
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Incontinence: The Caregiver's Role
by Kevin McShane
Incontinence in children is called "training".
In adults, it's often called embarrassing....Continued
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Carenotes |
I have a
grandson [age 11] who has
been diagnosed with
Asperser’s Disorder.
He has a difficult time with
making and keeping peer or
adult relations.
I am not
able to see him on a regular
basis. I usually try to get
together every month or two.
I need to know if there are
particular things than we
could do or places we could
go that would help him with
his disorder.
I have
always thought of him as a
loner. Where can a
grandfather go to learn what
to do to help this
situation? I live in Boca Raton,
Florida.
Answer This Week's CareNote:
carenotes/2007/index.htm
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