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President Caregiver
In May, we hosted a CEO panel at the Fort
Lauderdale Fearless Caregiver conference. Truth be known, I
was crossing my fingers about how well such a panel would
work since it truly exemplified our concept of fearless
caregiving. But it went over better than I could have ever
imagined. As I related in a
previous column, the discussion was lively, open and
invigorating. CEO’s shared their personal stories as
caregivers shared their thoughts on the future of the
healthcare system. I bring this event to your attention so
many months later, because yesterday I had an insightful
conversation with one of the CEO’s on the panel, Mark
Pafford, who has dedicated his life’s work to supporting
caregivers of those living with Alzheimer’s disease. Mark is
the CEO of the
Alzheimer’s Association, Southeast Florida Chapter
and a leading community activist. What I found most
interesting is that he is now a candidate for the Palm Beach
County Commission
(as if he doesn’t do enough for the community).
His candidacy is what I hope to see become a
trend with our healthcare leaders becoming policy makers. With a variety of extremely important
elections coming up within the next few months, it is
important for us to be fully aware of where the candidates
stand on caregiving issues as well as other vitally
important issues. Do you know where your local, state and
federal office holders and seekers stand on issues such as
research funding, caregiver program funding and
reauthorizations, funding for respite care, Medicare and
Medicaid issues and/or consumer directed care? For so many
reasons, we caregivers can find ourselves feeling isolated
and powerless, a fact that we work daily to help change for
the better, but imagine how powerful 54 million voters can
be when we use our voting privileges wisely by asking the
right questions and voting accordingly.
Now, I wonder if I can establish
residency in West Palm Beach’s sixth district in time to
vote for Mark?
Vote early. Vote often. Vote Caregiving.
What
questions would you like to see candidates asked regarding
caregiving issues?
Take care Gary Barg Editor-in-Chief
gary@caregiver.com
We still have two surveys available.
Click on a link below to participate.
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Feature
Article |
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Coping with the End of Life
By Janet Trakin, Staff Writer
As your loved one approaches death, you, as a caregiver, must not
only deal with the emotional aspects of loss and grief, but you are also
faced with very practical responsibilities. ....Continued |
Additional Articles:
The Summer I Took Care
of Grandpa Golden
by: Carolena Lapierre
In my 17th summer my Grandpa Golden had a stroke
that took away his health and ability to walk or
speak, but worst of all, his pride.
...Continued
Changing Hands
by
Ingrid Hekman Fournier
She’s awake.” I say to my husband as we watch TV in
the living room. He’s in one Lazy Boy. I’m in the other. .....Continued
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Guest Column |
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Caregiving by Men:
A Husband's Perspective
(Part 3 of 3)
By: Seth B. Goldsmith, Sc.D,. J.D.
The history of Taxol is truly a story
of alternative medicine.
.....Continued |
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Caretips |
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Arthritis Tips
By: Ryan Mackey
Few
diagnoses can create such a transition from the
routine in life, as does arthritis.
.
..Continued
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F r o m O u r R e a d e r s |
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Carenotes |
Ok, where do I start? I'm facing
the challenge of taking care of
my mother-in-law. I have no
schooling in elderly care, and
perhaps when she has accidents
{she wears a diaper} I don't
think any schooling can prepare
your mind for this. I just pray
and feel compassion for her. I
keep her doing activities. She
reads the paper, and loves my
dog. I feel I need to do more
from a physical point. Also I'm
not working and my finances are
low. Are there any benefits
available for caregivers like
myself? She gets social
security, but my father-in-law
puts it in his account. I just
want the best for her.
I want to meet all of her needs.
What are her rights? What are my
rights? Help!
C in Louisiana
Answer This Week's CareNote:
carenotes/2006/index.htm
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