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Starting and Running A Caregiver Support Group
Suggestions for Meetings
Lets get acquainted today.
Tell us the most difficult thing you
had to handle this week.
Remember, the best way to get a good
idea is to get a lot of ideas in front of the group.
Coping with caregiver worries.
Conquering caregiver fears.
Health strategies for active
Taking care of yourself.
Companionship, love and caregiving.
Coping with the Stress.
Understanding this disease
Keep it Going
The leaders and coordinator must take
ownership of the process and remember to rotate some
responsibilities. In the beginning, the group will focus
on the disease information process, prescription
comparison and common symptoms and afflictions. It will
take time to move to a wide variety of common topics.
Eventually, all of the clinical things get known and
broader and more common problems get discussed. It is
not unusual for a group to go for years and to have
upwards of 100 members. They come and go as their needs
and schedules require and as their personal caregiving
It’s also a good idea to keep a log of
the meeting date, time and discussion topics of that
meeting. It helps resolve issues, arguments and
scheduling later on.
In time, the group may wish to look into
assessing the effectiveness of the information and
support it provides. When new caregivers first begin to
attend the meetings, you can ask caregivers to fill out
a reliable depression questionnaire; when done again in
six and 12 months, you could then prove the positive
outcomes of the support group. Periodically surveying
all caregivers for suggestions, additions and deletions
to the program provides an anonymous forum to allow for
constructive change (or at least its discussion) within