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Family Caregiving and Public Policy Principles for Change*

Page 4

ENDNOTES:

1 Arno, P.S. (February 24, 2002). Economic Value of Informal Caregiving. Orlando, FL: Annual Meeting of the American Association of Geriatric Psychiatry.
2 MedPAC. (2002). Report to the Congress: Assessing Medicare Benefits. Washington, DC: MedPAC.
3 US General Accounting Office. (1994). Long-Term Care: Diverse, Growing Population Includes Millions of Americans of All Ages (GAO/HEHS 95-26). Washington, DC: GAO.
4 Agency for Healthcare Research and Quality (2000). The Characteristics of Long-Term Care Users. Silver Spring, MD: AHRQ.
5 Arno, P. S. (February 24, 2002). Economic Value of Informal Caregiving. Orlando, FL: Annual Meeting of the American Association of Geriatric Psychiatry.
6 MacCallum, R., et al. (2003). Chronic Stress and Age-Related Increases in the Proinflammatory ILś6. Proceedings of the National Academy of Science, 100(15), 9090 ś 9095.
7 Schulz R, & Beach, S.R. (1999). Caregiving as a risk factor for mortality: The caregiver health effects study. JAMA, 282, 2215-2219.
8 Altman, Cooper, & Cunningham. (1999). The Case of Disability in the Family: Impact on Health Care Utilization and Expenditures for Non-disabled Members. Milbank Quarterly, 77 (1), 39 ś 75.
9 National Alliance for Caregiving and Brandeis University National Center on Women and Aging (1999). The MetLife Juggling Act Study: Balancing Caregiving with Work and the Costs Involved. Westport, CT: MetLife Mature Market Institute.
10 Cannuscio, C.C., C Jones, C., Kawachi, I., Colditz, G.A., Berkman, L., & Rimm, E. (2002). Reverberation of family illness: A longitudinal assessment of informal caregiver and mental health status in the nurses‘ health study. American Journal of Public Health, 92, 305-1311.
11 George, L.K., & Gwyther, L.P. (1986). Caregiver Well-Being: A Multidimensional Examination of Family Caregivers of Demented Adults. The Gerontologist, 26(2), 253-260. As cited by Scharlach, A.E., Lowe, B.F., and Schneider, E.L. (1991). Elder Care and the Work Force: Blueprint for Action. Ontario, Canada: Lexington Books.
12 Kiecolt-Glaser, J., Trask, O.J., Speicher, J.R., & Glaser, R. (1995). Slowing of Wound Healing by Psychological Distress. The Lancet, 346, 1194-1196.
13 Schulz, R. & Beach, S. R. (1999). Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study. Journal of the American Medical Association, 282(23).
14 National Alliance for Caregiving & AARP (1997). Family Caregiving in the U.S.: Findings From a National Survey. Bethesda, MD: Authors, 1997.
151) Abelson, A.G. (1999). Economic Consequences and Lack of Respite Care. Psychological Reports, 85, 880-882; 2) Sherman, B.R. (1995). Impact of home-based respite care on families of children with chronic illnesses. Children‘s Health Care, 24(1), 33-45; 3) Theis, S.L., Moss, J.H. & Pearson, M.A. (1994). Respite for caregivers: An evaluation study. Journal of Community Health Nursing, 11(1), 31-34; and 4) Zarit, S.H., Parris Stephens, M.S., Townsend, A., & Greene, R. (1998). Stress reduction for family caregivers: Effect of adult day care use. The Journal of Gerontology, 53B(5), S267-S277.
16 1) ARCH National Respite Network and Resource Center (2002). Annotated Bibliography of Respite and Crisis Care Studies: Second Edition. Chapel Hill, NC: ARCH National Respite Network and Resource Center; 2) Cohen,
S. & Warren, R. (1985). Respite Care: Principles, Programs, and Polices. Austin, TX: PRO-ED; 3) Wade, C., Kirk, R., Edgar, M., & Baker, L. (2003). Outcome Evaluation: Phase II Results. Chapel Hill, NC: ARCH National Resource Center for Respite and Crisis Care.
17 Wade, C., Kirk, R., Edgar, M., & Baker, L. (2003). Outcome Evaluation: Phase II Results. Chapel Hill, NC: ARCH National Resource Center for Respite and Crisis Care.
18 Heyman, J. (2000). The Widening Gap. New York: Basic Books.
19 Donelan, K., et al. (2002). Challenged To Care: Informal Caregivers in a Changing Health System. Health Affairs, July/August 2002, 222-231.
20 Levine, C. (1998). Rough Crossings: Family Caregivers‘ Odysseys through the Health Care System. New York: United Hospital Fund.
21 AARP (2003). Beyond 50 2003 - A Report to the Nation on Independent Living and Disability. Washington, DC: AARP.
22 Op. cit.
23 Op. cit.
24 DeJonge, E. & Leff, B. (2003, August 7). A Real Medicare Remedy. Washington Post, p. A21.
25 ASPE, CMS, HRSA, DOL Office of the Assistant Secretary for Policy; BLS & ETA (2003). Future Supply of Long-term Care Workers in Relation to the Aging Baby Boom Generation: Report to Congress. Washington, DC: ASPE.
26 Donelan, K., et al. (2002). Challenged To Care: Informal Caregivers in a Changing Health Care System. Health Affairs, July/August 2002, 222-231.
27 Feinberg, L.F. (in press). The state of the art of caregiver assessment. Generations.
28 Feinberg, L.F., Newman, S.L. & Van Steenberg, C. (2002). Family Caregiver Support: Policies, Perceptions and Practices in 10 States Since Passage of the National Family Caregiver Support Program. San Francisco: Family Caregiver Alliance.
29 Gaugler, J.E., Kane, R.A. & Langlois, J. (2000). Assessment of family caregivers of older adults. In R.L. and R.A.Kane, eds. Assessing Older Persons: Measures, Meaning and Practical Applications. New York: Oxford University Press.
 


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